tag:blogger.com,1999:blog-19970831982173587112024-02-07T08:42:56.808-08:00Grace & GatorMama2Gracehttp://www.blogger.com/profile/12635949156093162181noreply@blogger.comBlogger53125tag:blogger.com,1999:blog-1997083198217358711.post-69221030837900927682015-11-04T18:24:00.005-08:002015-11-04T18:24:44.703-08:00Oh what a long time it has been<span style="font-family: Verdana, sans-serif;">It has been so long since I have updated the blog. I am sorry. I have been trying to update the Facebook page with pictures and brief updates. This summer was full of change as we moved about 80 miles south of our old hometown. Being in a new home, school, church and town has brought many changes we are working to embrace. We have kept all Grace's specialists the same, but she does have a new PCP doctor. She has been good to work with us and we are getting to know each other better. </span><br />
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<span style="font-family: Verdana, sans-serif;">Grace's vision has continued to decrease and we are working to get her the state services she needs at school to be academically successful. Her GI diseases have been relatively stable the last six months and we are so very thankful for that. We have a day surgery scheduled the Wednesday before Thanksgiving to check her esophageal health. We continue to do Botox injections and baclofen daily to help with her cerebral palsy issues. She still sees a lot of doctors, but she is working so hard to make great strides and we are proud of her.</span><span style="font-family: Verdana, sans-serif;"> </span><br />
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<span style="font-family: Verdana, sans-serif;">She continues to have increased pain which she describes as “thunder & lightening” in her neck, lower back and legs. In September we added gabapentin to her medicine routine and she has done a lot better, but evenings and nights are still very rough. We haven’t been able to identify specific pain triggers and that is why we went to Dr. Gandhi. <span id="yiv9836409644yui_3_16_0_1_1446686250925_3161"> </span>Dr. Gandhi said that the reason we haven’t been able to pinpoint a trigger was because it is caused by nerve damage.<span id="yiv9836409644yui_3_16_0_1_1446686250925_3162"> </span>She says this is a lifelong problem and we will have to work together to make sure she is getting good pain management. Grace can often appear uncoordinated and jerky in her reflexes. The doctor said this is due to uncontrolled nerve pain. She is changing up her medication dosage and schedule for the gabapentin. </span><br />
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<span id="yiv9836409644yui_3_16_0_1_1446686250925_3171" style="color: black; font-family: "Helvetica", "sans-serif";"><span style="font-family: Verdana, sans-serif;">Dr. Gandhi also talked to us a long time about Grace's physical activity level.<span id="yiv9836409644yui_3_16_0_1_1446686250925_3172"> </span>We have always encouraged Grace to do as much as she could physically handle.<span id="yiv9836409644yui_3_16_0_1_1446686250925_3173"> </span>Dr. Gandhi told us that was not okay.<span id="yiv9836409644yui_3_16_0_1_1446686250925_3174"> </span>With Grace’s nerve damage she said she doesn’t need any more than 30 minutes of physical activity before having 15 minutes of rest time.<span id="yiv9836409644yui_3_16_0_1_1446686250925_3175"> </span>She said that the physical impact on her body from high intensity activity causes more damage and increased pain.<span id="yiv9836409644yui_3_16_0_1_1446686250925_3176"> </span>She said even if Grace does not want to stop the activity that she needs to be told it is time to sit down, rest and hydrate. She told us to encourage low impact activities for extracurricular physical activity (swimming, biking, golf, Pilates and yoga).<span id="yiv9836409644yui_3_16_0_1_1446686250925_3177"> </span>These will increase her muscle flexibility while not taxing her nervous system.</span></span><br />
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<span style="color: black; font-family: "Helvetica", "sans-serif";"><span style="font-family: Verdana;">She loves kindergarten and she loves her teacher. We are all working together to get her the accommodations she needs to be successful. She is excited to go to school in the morning and she has made several friends. Her teacher reports that on days when she is absent some older girls always stop by her room to check if she has heard from me and if she is sick. That is one of the perks of being in a very small school district.</span></span><br />
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<span style="color: black; font-family: "Helvetica", "sans-serif";"><span style="font-family: Verdana;">Please continue to pray for our girl and for Gator Dog. Gator Dog continues to struggle with ear infections (honestly I think the original one has never cleared and no he has not been in the water). He is always working so hard for Grace, but we can tell when he just doesn't feel well. He goes back to the vet on Monday and this time Daddy is going to take him. </span></span><br />
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<span style="color: black; font-family: "Helvetica", "sans-serif";"><span style="font-family: Verdana;">You are a blessing to our family. We covet your prayers, love and support.</span></span><br />
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<span style="color: black; font-family: "Helvetica", "sans-serif";"><span style="font-family: Verdana;">Blessings,</span></span><br />
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<span style="color: black; font-family: "Helvetica", "sans-serif";"><span style="font-family: Times, "Times New Roman", serif; font-size: large;"><strong><em>Alisha</em></strong></span></span>Mama2Gracehttp://www.blogger.com/profile/12635949156093162181noreply@blogger.com0tag:blogger.com,1999:blog-1997083198217358711.post-75505315960927205332015-05-06T19:09:00.000-07:002015-05-06T19:09:56.863-07:00Two years ago today . . .2 years ago today we entered Our Children's House at Baylor for our first long inpatient hospitalization. How little did she and I know about how the future would unfold. We have since learned about her Eosinophilic Esophagitis and spastic diplegia CP and of course, added Gator to our lives. Both of these diagnosis came as direct results from Natalie (our feeding therapist) and Margaret (her PT) who both insisted their was more to uncover and understand about our baby girl. Thank you for sharing this journey with us and thank you for praying for our family.Mama2Gracehttp://www.blogger.com/profile/12635949156093162181noreply@blogger.com0tag:blogger.com,1999:blog-1997083198217358711.post-59874765645011807352015-03-16T06:45:00.007-07:002015-03-16T06:45:48.371-07:00You make me brave.On Friday night Miss Grace and I joined some friends for the premiere of Cinderella! It was a fabulous movie and the over all theme was have courage and be kind. It fell right in step for our family theme for 2015 about being brave. Every day we sing the song, <a href="https://youtu.be/Q2PbLetXTHY" target="_blank">"You Make Me Brave" by Bethel's Amanda Cook.</a> Jesus is the one who gives us the strength to face each new challenge. I admit there are days when I am sad and just want to have playdates and home days like other mom's and kid's. Instead we are out the door at 7:30am and off to therapy and our schedule is dictated by medication times, appointments and therapeutic massage. But I know God has a plan and a purpose for my precious girl and he is going to use her testimony to reach the nations for Him. <br />
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So speaking of schedules, we came home to about ten more days of bad weather. That meant missed appointments and rearranging our schedule. We wanted to have Miss Grace back at school on 3/16, but now we are shooting for 3/30. It doesn't make sense to start back to school and then miss 7 of the next 10 school days. <br />
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Today is a huge day for our girl. A day that is going to be rough on her, rough on Gator and rough on me. Please pray for her. We have to do some lab work this morning. This is always an awful experience for her, no matter how wonderful the nurses and staff are. We need the information and this cannot be avoided. Pray for peace in her little heart. Then after that we have to go see her muscular neurologist. He is one of the best in the country and we respect his opinion and recommendations. Because of her cerebral palsy everything from her waist down is effected. We have been on oral medication and she is in her leg braces, but now we have to up her botox and do injections in her legs to help with the spasticity. We pray this brings her some relief, although the injection process is going to be rough. Because of her feeding and oral issues she does not take the silly juice medicine well. We need her to swallow it so she can be kind of loopy and less resistant to the injection process (which will be harder on her). Can you pray that for me? 827 is at his new job and so it will just be me and Gator taking her today. <br />
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Thank you friends, for praying for my sweet girl. I cannot tell you how much the calls, texts, letters, care packages and visits meant to us while we were in the hospital. Every time we had a need God provided and met it before we could even worry. I know He is in control. Thank you for sharing this journey with us. I cannot imagine doing it without you. </div>
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Mama2Gracehttp://www.blogger.com/profile/12635949156093162181noreply@blogger.com0tag:blogger.com,1999:blog-1997083198217358711.post-58820251559584563232015-03-16T06:18:00.000-07:002015-03-16T06:18:28.086-07:00Catching up - birthday, discharge and homecomingWhen you hear people talk about "caregiver fatigue," it is a real thing. We made it through the hospital stay with different issues almost every day. The feeding program itself is amazing and successful. The drama of extended hospital living is ridiculous. Because this is a rehab hospital and the children are healthy, the kids (and parents) are out and about all the time. It is like sensory overload at times. Add in 4 different snow and ice days and the fact that the kids could not play outside as much as they needed to and it was rough. The day we discharged was a weather/snow/ice day. I told them I would walk home and come back for my stuff if that is what it took. I was not joking either. Thankfully we made it home slowly and safely. When we walked into the house I felt like I got hit by a ton of bricks. I was exhausted. I could have slept for days. I many ways I am still not back to normal and emotionally I am tired too. I joke and tell 827 Gator and I need a recovery vacation. <br />
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The best part of the hospital, besides the program itself, is the connection you make with some of the other parents. Parents who get it and who are living it just like we are. Grace made some precious friends. This is what makes the difference for the kids. Kids who can talk about their g-tubes and their struggle with food like it was everyday life. Because for them it is every day life. We will never forget the friends we made and we hope we can remain friends for a lifetime. We still get together with families from our first long term inpatient stay - in fact just Saturday we celebrated sweet Isabella's 3rd birthday! She ate bites of pizza and a cupcake (which are safe for her). As a fellow feeding Mama, I think that was the best part of the party! Feeding success. It is slow and it is hard, but it happens.<br />
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Miss. Grace celebrated her 5th birthday at the hospital. Child Life did an amazing job throwing her FROZEN Ball! We make frozen fractal ice castles out of shaving cream, created rock trolls like Kristoff's family and played a game where we built an Olaf out of toilet paper. It was so fun and we were blessed to celebrate with about 60 friends, family and fellow patients! Everyone had a great time! Unrefined Bakery in Dallas did an amazing job creating a safe cake and Miss Grace ate two pieces! That was amazing and I was so thrilled!<br />
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We did lose more food groups at the hospital - legumes and corn. Those are hard losses for my baby girl. They had gotten her to eat a homemade safe hummus and safe black bean dip and she liked them. Her beloved popcorn and fritos are now gone too. It has been hard. She is eating okay. She is still drinking formula and will probably always drink formula to some degree, even as an adult. We understand that and just want her to keep up her oral intake.<br />
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Here are a lot of pictures from our stay. I have thousands I could upload but here are just a few . . her facebook page and instagram have many more. <br />
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Mama2Gracehttp://www.blogger.com/profile/12635949156093162181noreply@blogger.com0tag:blogger.com,1999:blog-1997083198217358711.post-28902152420473386962015-02-08T07:50:00.001-08:002015-02-08T07:50:24.234-08:00Making steady progress & then a big crashMiss. Grace is making steady progress here at Food Camp. She is working hard in her therapies and she is really pushing through a lot of things. We are so proud of her hard work! <br />
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On Thursday evening we had the best time since we came to Food Camp. There was a scheduling error and the monthly family dinner was canceled. The parents were hungry (there is not cafeteria here in our building and you get one meal tray a day and cannot eat in front of your child until after 7pm) so we decided to order pizza and hang out in the playroom. The kids had a good time and the parents got to visit, laugh and relax. It was so therapeutic for me - I needed that connection and downtime. This process is incredible intense and rigid. I was thankful for new friends and laughter.<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiq9kXqWyqu74v7SfNzjOaBRF5JOQ_fRnl3QJLQ0tb2DqREemOcLJVGFn-Qhu3bqxDR8quCfUKWugMapk2nvlLjRwtMiJZsJR6quJs3b5wD2Lpwfj5-75c4eCmFGJkfTwdhnrEBTHZwyAo/s1600/Day+9+%234.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiq9kXqWyqu74v7SfNzjOaBRF5JOQ_fRnl3QJLQ0tb2DqREemOcLJVGFn-Qhu3bqxDR8quCfUKWugMapk2nvlLjRwtMiJZsJR6quJs3b5wD2Lpwfj5-75c4eCmFGJkfTwdhnrEBTHZwyAo/s1600/Day+9+%234.JPG" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">This older girl is Kaitlyn that I asked you to pray for. She got to see the pain management doctor and is feeling better with a medicine change, although her health is still fragile. Please keep praying for her. </td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgRYLaAwGB3UQgcFt9Dlo9rq7KH36_hVrYpp0DJtIJPNvM_RNDlGPbkscBT_-i6tBkwfNRWoHkOeL6NU4rDe_KmBCl0M57oUlc-e2zAeWf-oTd0FgsQaemG-7h8_x-SzhqxLx4L53-Qezk/s1600/Day+9+%231.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgRYLaAwGB3UQgcFt9Dlo9rq7KH36_hVrYpp0DJtIJPNvM_RNDlGPbkscBT_-i6tBkwfNRWoHkOeL6NU4rDe_KmBCl0M57oUlc-e2zAeWf-oTd0FgsQaemG-7h8_x-SzhqxLx4L53-Qezk/s1600/Day+9+%231.JPG" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Sometimes Grace is just so worn out. This process is intense on all levels. Thank goodness for Gator Dog loving. He has changed her world so much.</td></tr>
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Friday started off sad, but turned in to a good day. Our suitemates and dear friends graduated from the program. Gabby & Grace became very close and were both in Princess Wonderland most of the day. They played well together, went to school together and pushed each other in therapy. Her Mama was just as precious and we look forward to growing our friendship outside of the walls of the hospital. I was careful not to tell Grace that Gabby was going "home," but she heard the nurse say that. For the first time in 11 days she asked when she could go home.<br />
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Friday afternoon we got a visit from our friend Amber and her precious baby boy! We were laughing as we realized we have known each other almost 8 years now! What started out as a professional relationship has become a deep friendship. I am thankful for what she has meant to our family! We loved seeing them and Grace loved her new FROZEN dress and accessories. <br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi82uCscaicIC2wtW54kAoeOBMDQdNynqP0RUnYzqYOyd35vmAlHkPNb6nwGy8LyEGgkK-HE59vxw654HJ6ESUI-Sx6Cthgz6wUynFo6o9ASGZfIXsziniULmBUBDn8SNgHv2nHjx0pI9Y/s1600/Day+11+%232.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi82uCscaicIC2wtW54kAoeOBMDQdNynqP0RUnYzqYOyd35vmAlHkPNb6nwGy8LyEGgkK-HE59vxw654HJ6ESUI-Sx6Cthgz6wUynFo6o9ASGZfIXsziniULmBUBDn8SNgHv2nHjx0pI9Y/s1600/Day+11+%232.jpg" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Miss Amber has known Noah since he was a tiny baby boy!</td></tr>
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Saturday we were looking forward to a beautiful weather day with time for outside play in between therapy sessions. 827, Cowpoke and Layni all came to visit! We were so excited for family time and going outside! We went to the outdoor playground and after about 15 minutes Grace had a big crash, tripping over her own feet. She hit her head pretty good and landed on her face. It was a bloody mess and she was hysterical. She finally calmed down but did not want anyone touching her. She certainly was not going to do any more therapy for the day and she was not going to eat. She was able to rest, although she was not comfortable (and she was refusing meds offered). She was up and down until about 3 am. Needless to say we are both dragging this morning. Even Gator is tired! <br />
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Please keep praying! We need her to feel better so she will eat and do her therapies so our stay here is not extended! Thank you so much! I cannot imagine being here without my prayer warriors praying for us! ~ Mama<br />
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<tr><td class="tr-caption" style="text-align: center;">Cowpoke was drawing her picture and doing everything he could to cheer her up</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">She finally calmed down and slept while 827 held her. </td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjfOpx-XYPnlPQYYETA7sWbebfKpeDUHxu9NxdOPx7jnrVLQ7HzyIk_kFSGrY32YPrZTxdpqEhNBpe7IwHguozG7lkMSoi52Y2RvPP7V5_LMCdoyv-h-51ucMthtx6Up8O0wdfk9pCIDHQ/s1600/Day+13+%233.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjfOpx-XYPnlPQYYETA7sWbebfKpeDUHxu9NxdOPx7jnrVLQ7HzyIk_kFSGrY32YPrZTxdpqEhNBpe7IwHguozG7lkMSoi52Y2RvPP7V5_LMCdoyv-h-51ucMthtx6Up8O0wdfk9pCIDHQ/s1600/Day+13+%233.jpg" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">It's 2:30 am and her face hurts and she is swollen up pretty good. Poor kiddo cant catch a break.<br />
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Mama2Gracehttp://www.blogger.com/profile/12635949156093162181noreply@blogger.com0tag:blogger.com,1999:blog-1997083198217358711.post-46978687481897730382015-02-04T10:43:00.004-08:002015-02-04T10:43:57.707-08:00Emotionally tiredI am sorry that I have been terrible at keeping the blog and facebook page updated. I have been processing a lot emotionally and just did not have it in me to blog. The past few days have been hard. On Monday, our little friend Raeleigh received the news that the tumor on her spine that left her without feeling from her waist down is rare and aggressive. The prognosis is only 25%. One minute the girls were having a tea party in the playroom and within 30 minutes the ambulance was here wisking her back to Children's to have a port placed so they could start aggressive chemotherapy immediately. She is two years old and won't turn 3 until March. Please pray for the Vasquez and Hogue families.<br />
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Yesterday, we learned our 13 year old friend named Kaitlyn is not seeing the shrinking they hoped in her brain tumor. She also continues to develop issues from her brain tumor and medication side effects that continue to stump doctors. She is a precious girl who is a "big sister" to the little kids on our wing. Being a 13 year old is so hard, much less having an aggressive brain tumor. She has lost all feeling on her right side and is not having some nyropothy issues that cannot be explained. Pray for her and her mom. <br />
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That being said it has been a frustrating week for me. I feel badly being frustrated and overwhelmed because I know there are kids like Raeleigh and Kaitlyn that are dealing with so much worse. We had our first inpatient care team conference yesterday. She is making steady progress and working hard in therapy. She has made some great gains in physical therapy. Our tentative discharge date is February 25. That is three weeks from today. I admit I was disappointed as I wanted to be out sooner, but I am trying to focus on all her gains. It means a birthday in the hospital, but child life is planning a FROZEN ball. If you would like to come let me know and we can mail you an invitation. The team does feel that given Grace's diagnosis's that she will probably always require some sort of feeding therapy. That was disappointing. We are not going to take away all her medical formula from her diet as we had previously discussed. She needs the calories and depending on disease progression we can up the volume as necessary. <br />
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Here are some pictures from the last few days . . .<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg7tu7I3iUJ8XBIscyrj8UsbeAwKuJ_RhBmqK30FV42Idb0tS__OVgDQ0namn3vPD7s4YDpPv1VodwGtxIKEhUSReQHmepTJLJQZ9zWyk7ucWOmDpyv44maYVhQklMXxSSPQstjVP6_uZY/s1600/OCH++Day+8+%232.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg7tu7I3iUJ8XBIscyrj8UsbeAwKuJ_RhBmqK30FV42Idb0tS__OVgDQ0namn3vPD7s4YDpPv1VodwGtxIKEhUSReQHmepTJLJQZ9zWyk7ucWOmDpyv44maYVhQklMXxSSPQstjVP6_uZY/s1600/OCH++Day+8+%232.JPG" height="320" width="240" /></a>ou</td></tr>
<tr><td class="tr-caption" style="text-align: center;">Playing outside on Monday morning between therapies. It was chilly!</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9cbpf0xd7ViiNuBGRj0EOeR8LthJ7BvTL4qyVhyphenhyphennm53r9HpwIFkHe1TlDbtnpSb4gHEkX1A-7fAgRdwIfGKxXik5hMIJIh6ndSyVqXTv03379KY0P7EC7QbRG1qx2rzaxoLfribyWopM/s1600/OCH+Day+7+%231.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9cbpf0xd7ViiNuBGRj0EOeR8LthJ7BvTL4qyVhyphenhyphennm53r9HpwIFkHe1TlDbtnpSb4gHEkX1A-7fAgRdwIfGKxXik5hMIJIh6ndSyVqXTv03379KY0P7EC7QbRG1qx2rzaxoLfribyWopM/s1600/OCH+Day+7+%231.JPG" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">She wanted a bell on her bike like the ones in child life. Daddy made it happen.</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj4M-w196JZeUhO3gGWXMlqt5U_v0ozmqXWpKqEw6oulv0gwfZObq0cjq5FJhvphjroUtJ81FNtmwM1a4zZAKNC7hGS_dj_oLofCvN8fodBGjSgs2EFhT6pvndCmfPFlPpxS53gMCA-ROU/s1600/OCH+Day+7+%232.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj4M-w196JZeUhO3gGWXMlqt5U_v0ozmqXWpKqEw6oulv0gwfZObq0cjq5FJhvphjroUtJ81FNtmwM1a4zZAKNC7hGS_dj_oLofCvN8fodBGjSgs2EFhT6pvndCmfPFlPpxS53gMCA-ROU/s1600/OCH+Day+7+%232.JPG" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">She loves getting mail! </td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhtNFnvyS2BssRgEQMNw3J3FSIN0Oc3T0K9QerexToKcPdqjdPRkFTY81uN0qizQI41nU8akyjOnQyNHaS7D0C7hVgnZATdIWc1AyVKI53TTsajGSVhSB1rxJ92CkHQnLJ9LLo0ANk2Mns/s1600/OCH+Day+7+%233.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhtNFnvyS2BssRgEQMNw3J3FSIN0Oc3T0K9QerexToKcPdqjdPRkFTY81uN0qizQI41nU8akyjOnQyNHaS7D0C7hVgnZATdIWc1AyVKI53TTsajGSVhSB1rxJ92CkHQnLJ9LLo0ANk2Mns/s1600/OCH+Day+7+%233.JPG" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Doing a princess puzzle from our friend Heather and her family</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgajlUdOXJFxsgYgoRGE6y0o8gll8HSXtiByQ-jRKotb2dsg7xk7xgSyzj7nSbwsCSD5lKj24er0qH9dDWnZrhbWSh1_jFyTO_bap69EWoOqKBzay-oOxYV_BwsodS94RBxcScr1HNZS5A/s1600/OCH+Day+7+Grace+and+Gator+drawing.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgajlUdOXJFxsgYgoRGE6y0o8gll8HSXtiByQ-jRKotb2dsg7xk7xgSyzj7nSbwsCSD5lKj24er0qH9dDWnZrhbWSh1_jFyTO_bap69EWoOqKBzay-oOxYV_BwsodS94RBxcScr1HNZS5A/s1600/OCH+Day+7+Grace+and+Gator+drawing.JPG" height="320" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">She made this sign for our door</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj0Bvme1y35_bpoDz2FSu8C9Z1ZHpBOARXBO0s7SLsJnP5Ugh05gw-p9aF3O0MPrQqFAQGMeYBy-labSarvSrNagnK634nN6PkIUgBKfFqNovQG3CtZWl4unu4kygZZi0Q078vbNFYWVeA/s1600/OCH+Day+8+%231.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj0Bvme1y35_bpoDz2FSu8C9Z1ZHpBOARXBO0s7SLsJnP5Ugh05gw-p9aF3O0MPrQqFAQGMeYBy-labSarvSrNagnK634nN6PkIUgBKfFqNovQG3CtZWl4unu4kygZZi0Q078vbNFYWVeA/s1600/OCH+Day+8+%231.JPG" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Isabella came to visit! We went to child life and painted. </td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhnBdoDqShVn7vigICBuaHqzUdgT6_VqtCojaKfaOZnWxx5XUKItVdCZ7JGFEqJpEMhDy1VeTIyLK9ymLZUdWNOOot9P81KnILxbpMX27E1Yn4dXLXUjuuTVBZCYZ6xgc8wHBnT2sZtXi4/s1600/OCH+Day+8+%233.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhnBdoDqShVn7vigICBuaHqzUdgT6_VqtCojaKfaOZnWxx5XUKItVdCZ7JGFEqJpEMhDy1VeTIyLK9ymLZUdWNOOot9P81KnILxbpMX27E1Yn4dXLXUjuuTVBZCYZ6xgc8wHBnT2sZtXi4/s1600/OCH+Day+8+%233.JPG" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">I am so glad we brought the easel. She is in the room making a card for her friend Marcus who has pneumonia.</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Our daily trip to the chapel to "make a joyful noise"</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Sensory Science Lab! Making goo with our suitemate, Gabby</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Goo! I was so proud of her for touching and playing! </td></tr>
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Thanks for praying, my friends. We do covet your prayers! Mama2Gracehttp://www.blogger.com/profile/12635949156093162181noreply@blogger.com0tag:blogger.com,1999:blog-1997083198217358711.post-13081642241337071982015-02-01T16:45:00.005-08:002015-02-01T16:45:22.614-08:00Day 5 and Day 6My phone had a complete malfunction and died on Tuesday night. It was awful and bring stuck in the hospital and without my phone it was not fun. I may or may not have told 827 I felt like I was imprisoned. LOL. With Best Buy I was going to have to send it off and be without a phone for 7-10 days. Thankfully 827 spent his Saturday evening at the Apple Store. They replaced my phone for free (thank the Lord!) and I am back in business. <br />
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Miss Grace had a busy Saturday. She just had 5 therapy sessions as opposed to the weekday schedule of 8 therapy sessions and 30 minutes of hospital school with DISD. We played a lot and the playroom was busy, busy, busy! I was ready to get settled for bed by 6:30. Thankfully Grace doesn't tell time. We were able to get on our jammies and settle in for a movie night in room. She picked <strong><em>Princess Diaries</em></strong>, which was a favorite with her big sisters, so that brought back a lot of memories for me. <br />
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This morning we were up at 6 am for vitals, meds and the doctor doing her rounds. She was early as she wanted to go to church, which I could appreciate, but man, 6 am on Sunday?! Miss Grace was anything but cooperative and I was ready for a Mama time out when she went to her first therapy at 7:30. When she came back we got her ready for today and did her stretches. We listened to our favorite song, <a href="http://youtu.be/Q2PbLetXTHY" target="_blank">You Make Me Brave by Amanda Cook.</a> It helped us to refocus. <br />
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We tried to log in to watch our church online but hospital wifi blocked it. We were so sad. We decided to head to the Protastant service in the chapel. It was lead by a nice chaplain who is assigned to the children's hospital. It was a liturgical service and after about 15 minutes Grace said, "I miss my happy Avenue Church!" Needless to say we slipped out the back. <br />
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Thankfully Daddy arrived at lunch time and he was able to "convince" her to take her medicine and to cooperate. We had more therapy and did some painting in Child Life. Cowpoke, Grammy and Yank-Po arrived about 3:30 and we had a good visit with them. <br />
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We ended our day with more therapy and a hot bath to relax her muscles. She has been working them hard and they are cramping a lot. She had no interest in the Super Bowl and was quite mad at me when I was telling her that the lady singing the National Anthem was the lady who sand Let It Go. She wanted her to look like Elsa. <br />
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Speaking of, we are about to pop FROZEN in the laptop and have a quiet evening after meds at 7 pm. Thanks for praying my friends. Mama2Gracehttp://www.blogger.com/profile/12635949156093162181noreply@blogger.com0tag:blogger.com,1999:blog-1997083198217358711.post-47891311013210049722015-01-29T18:46:00.001-08:002015-01-29T18:46:08.860-08:00Day 4Well hopefully things will get better after today. We moved rooms so those who wanted to send mail the new room is 121. It was one of those days where I was thankful to be wearing my Be The Church shirt. Every time I would look down and see the bright yellow logo I would be reminded that we are to be Christ's witnesses and show love to others even when it feels inconvenient, ridiculous and undeserved. Keep praying for us friends! <br />
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My phone is also dead and won't turn on. It says to plug in to iTunes and is locked. I youtubed some reset videos and now it won't turn on at all. Go figure. Message me on facebook or call 827 if you need me and pray for Best Buy to be able to fix it in the morning.<br />
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We end today with good news for my sister and good news for 827. These moments remind me of the bigger picture and God's greater plan. <br />
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<em><u></u></em>Mama2Gracehttp://www.blogger.com/profile/12635949156093162181noreply@blogger.com0tag:blogger.com,1999:blog-1997083198217358711.post-49389238915519271712015-01-28T17:24:00.001-08:002015-01-28T17:27:46.795-08:00Food Camp Day 3Phew! 3 days DONE! <br />
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Today was an okay day. We had some issues that needed resolving and thank goodness for Daddy who is not afraid to say no. Mama tends to be emotional and compliant. I will be honest - the last 36 hours have not been pleasant and I was ready to pack up and come home. But then I remember our goals for Miss Grace and I see how amazing she is doing in feeding with her awesome therapist, Mrs. Kayla and her feeding tech, Miss. Lauren. <br />
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On a praise note, Miss Grace ate 23 grams of banana today! She is not a banana fan but the natural potassium does wonders in helping her legs not to cramp. Last fall we spent 5 30 minute outpatient session on banana and were unsuccessful. Today she did it! She does not want a tube and she knows that we mean business about eating. We are so proud of her! <br />
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Today she started DISD hospital school. Her teacher is Mrs. Dixon and she was super sweet. School only lasts 30 minutes. Grace got to do the calendar and weather and work flashcards and do some writing. She had fun so I was glad that was a positive spot among a busy day of therapy. <br />
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This afternoon we spent some time outside on the playground. It was a beautiful 80 degrees and that hour that we boycotted "quiet rest" and played outside was good for all of us!<br />
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We finished her Valentine's for her PPCD and Pre-K friends at home today too. <br />
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She also was blessed to receive a package from the Bee Brave Foundation today! It was her own personalized busy tray art desk! We have no idea who recommended her for this special blessing but to whoever you are THANK YOU! It was a huge hit! </div>
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Thank you friends, for continuing to pray for us. Your prayers are felt and are coveted. We are all determined to make excellent progress and control this disease and get the calories she needs. We love you all!</div>
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Until tomorrow,</div>
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<em><span style="color: #741b47; font-family: Georgia, "Times New Roman", serif; font-size: x-large;">Mama</span></em></div>
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Mama2Gracehttp://www.blogger.com/profile/12635949156093162181noreply@blogger.com0tag:blogger.com,1999:blog-1997083198217358711.post-68206508565467162422015-01-27T19:58:00.002-08:002015-01-28T17:24:54.613-08:00Food Camp Day 2After a short night we were up at 6 AM for vitals and meds. It seemed eons earlier than the 6:30 AM we do at home. Miss Grace had therapy starting at 7:30 for breakfast feeds and then going to an hour of OT, an hour of PT and then a 30 minute break before her lunch feed. She had a busy afternoon getting speech feeding and 2 more feeding sessions. She did really good today and was exhausted tonight. We went to "science night" although the experiments didn't work as planned. That is science, right? Tonight we hit the tub first. She got her massage and stretches and meds and was sound asleep by 7:30 PM. We are all tired and I don't know why I am dreading this so much more than last time. Last time we were in with an amazing group of kiddos and parents. This time there is not a bond like that, but it is only day 2. <br />
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I took this picture below before we went to science night. It was one of those days where we are all tired and it is just Tuesday. Thank you for praying friends.<br />
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Mama2Gracehttp://www.blogger.com/profile/12635949156093162181noreply@blogger.com0tag:blogger.com,1999:blog-1997083198217358711.post-35009281067912372932015-01-26T18:04:00.000-08:002015-01-26T18:04:18.630-08:00Food Camp Day 1This morning, after many tears, we said goodbye to Cowpoke and headed to Dallas. We arrived and survived admission. It has been a busy day of meetings and lots and lots of paperwork. Gator has been very nervous about all the people. We arrived in time for the weekly cooking class with Chef Zoe, but we skipped that to unpack in our room. We kicked off with feeds at 1:30pm.<br />
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Miss Grace is very tired and Mama is too. Here are a few pictures from our decorated room. Therapy starts at 7:30 AM tomorrow and goes until 4:30 PM. We enrolled in DISD so hopefully we can start school on Wednesday.<br />
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PS. We just got to talk to Cowpoke. He had a good day and Nana fixed him some homemade veggie soup. :) <br />
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<tr><td class="tr-caption" style="text-align: center;">Resting. We had a panic attack and it drained us.<br />
Thank goodness for Gator dog. </td></tr>
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<tr><td class="tr-caption" style="text-align: center;">She put out her "crystal angel" from her teacher, Ms. Dively</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhavcp8dSBwwpY5tn4-OrToUGeBwm-D0lTy1cnPkoRTEW0neN2SSHQhcFbNC_OQNKFiC0SaoX1FB3n6RA8YbgNOdl0i7iz1ABJXO2OCl3GDy7aJCaXahyphenhyphenoBbyFYU6T3pdtsLS3cgsyK7pI/s1600/Day+1+%233.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhavcp8dSBwwpY5tn4-OrToUGeBwm-D0lTy1cnPkoRTEW0neN2SSHQhcFbNC_OQNKFiC0SaoX1FB3n6RA8YbgNOdl0i7iz1ABJXO2OCl3GDy7aJCaXahyphenhyphenoBbyFYU6T3pdtsLS3cgsyK7pI/s1600/Day+1+%233.JPG" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Of course we brought the easel!</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhO1v6r1VC0nV32mhyDYymXb6mJNusrLCJ0L4o_7pnElROTdKq26ze4B6cvbpPo5cuuRCQ1kK6EHrJ2eUEix8kSEofJys33EIK9lWUnc_T57ZSpX2cZp_ic1JL3NBt6eIifeizp79WuIJI/s1600/Day+1+%234.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhO1v6r1VC0nV32mhyDYymXb6mJNusrLCJ0L4o_7pnElROTdKq26ze4B6cvbpPo5cuuRCQ1kK6EHrJ2eUEix8kSEofJys33EIK9lWUnc_T57ZSpX2cZp_ic1JL3NBt6eIifeizp79WuIJI/s1600/Day+1+%234.JPG" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Thank goodness we have a lot of cabinets for storage in this room! </td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhts1P3HhdztZzBOG67-T4Bf1ePqiW3fgPCeHwfBxdt4ftoQ51qf9heIs0cYlj37QjTW2o50M0Kpq98rq_9yNOq64REF_0joxPvlRdGCQWa7uENfwu41WEKZMmXmNx_CQxtEIhwoZqeOds/s1600/Day+1+%235.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhts1P3HhdztZzBOG67-T4Bf1ePqiW3fgPCeHwfBxdt4ftoQ51qf9heIs0cYlj37QjTW2o50M0Kpq98rq_9yNOq64REF_0joxPvlRdGCQWa7uENfwu41WEKZMmXmNx_CQxtEIhwoZqeOds/s1600/Day+1+%235.JPG" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">FROZEN poster from Grammy and Yank-Po and movie slides from sweet Samantha<br />
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Mama2Gracehttp://www.blogger.com/profile/12635949156093162181noreply@blogger.com0tag:blogger.com,1999:blog-1997083198217358711.post-26944134109353778792015-01-21T15:18:00.005-08:002015-01-21T15:18:47.026-08:00Insurance approval! <table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgyMkNuKfZvLgwDCRB4ttcCnQVyrg5kDsur3i5aW98NH8nuvIT0T7R4VxV3LcrJw3r2knfVYgLzlKRTH-D_VgapmjkFYu6FTvdSBr_Hm6JdRQZ5UD93v2Tn0uEU0KZUu_eKeX3Y_neDYvo/s1600/Baylor+Bears.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgyMkNuKfZvLgwDCRB4ttcCnQVyrg5kDsur3i5aW98NH8nuvIT0T7R4VxV3LcrJw3r2knfVYgLzlKRTH-D_VgapmjkFYu6FTvdSBr_Hm6JdRQZ5UD93v2Tn0uEU0KZUu_eKeX3Y_neDYvo/s1600/Baylor+Bears.JPG" height="320" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Being out of school and waiting for the hospital to call means free time for us! <br />
We took a fieldtrip to Waco to visit the Baylor Bears, Joy & Lady. As you can see they were sound asleep not giving us the time of day. Gator was not to interested in them either. Miss Grace sure was! </td></tr>
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<span style="color: #4c1130; font-family: Georgia, "Times New Roman", serif; font-size: large;"><em>We have insurance approval! But 827 and I decided we are going to wait and come in on Monday since we have an appointment on Friday with her EoE doctor at another hospital. They were going to let us leave and go but that is a lot of change for my sensory child with only being in the hospital for 24 hours at that point. It also means a birthday in the hospital, but I don't know what else we can do. We all just want this over with. Keep praying friends.</em></span><br />
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<span style="color: #4c1130; font-family: Georgia, "Times New Roman", serif; font-size: large;"><em>We also want to send a huge thank you to Karen Mayer who provided this beautiful Mori Lee gown for Miss Grace to wear in the pageant in March! She is very excited!</em></span> </div>
Mama2Gracehttp://www.blogger.com/profile/12635949156093162181noreply@blogger.com0tag:blogger.com,1999:blog-1997083198217358711.post-52957410905901397162015-01-18T13:14:00.000-08:002015-01-18T13:14:58.034-08:00Tuesday is the big day<br />
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<span style="font-family: Calibri;">Tuesday is the big day.<span style="mso-spacerun: yes;">
</span>I am nervous.<span style="mso-spacerun: yes;"> </span>And let’s be
honest, I wish there was some other way to do this without going back to the
hospital.<span style="mso-spacerun: yes;"> </span></span></div>
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<tr><td class="tr-caption" style="text-align: center;">Friday she got to attend the "Right Choice" rally for good behavior at school first semester. Then I had<br />
to withdraw her from school to enroll her in DISD while we are in the hospital. She is going to miss her teachers,<br />
her friends and her favorite "Mrs. Cheryl"</td></tr>
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<span style="font-family: Calibri;">I have gotten a lot of questions about why we are having to
go it.<span style="mso-spacerun: yes;"> </span>Here is the short version.<span style="mso-spacerun: yes;"> </span>Grace <span class="editorialdate"><span lang="EN" style="color: #333333; mso-ansi-language: EN;">suffers from Eosinophilic
Esophagitis, an inflammation of the esophagus resulting in extremely limited
food intake options. Miss Grace is dependent on enteral formula called Elecare
Jr.<span style="mso-spacerun: yes;"> </span>This formula is nutritionally
complete, <span style="mso-spacerun: yes;"> </span>but it is very expensive costing
approximately $1,200 per month. Miss Grace loves her formula and has been on
this particular brand since she was eight months old.<span style="mso-spacerun: yes;"> </span>Thankfully she is growing taller and we need
to increase her caloric intake.<span style="mso-spacerun: yes;"> </span>It is
really hard to get her to drink 48-52 ounces orally each day.<span style="mso-spacerun: yes;"> </span>Most EoE children at this point get a feeding
tube placed and supplement their calories with night feeds through their
feeding tube.<span style="mso-spacerun: yes;"> </span>Well anyone that knows
Miss Grace knows that she has some sensory challenges and she hates anything
sticky or tacky.<span style="mso-spacerun: yes;"> </span>In physical therapy
they tried to use kinesio tape on her feet and legs.<span style="mso-spacerun: yes;"> </span>It was supposed to stay on 5-7 days (through
bath) before it came off.<span style="mso-spacerun: yes;"> </span>Miss Grace had
it ripped off before we were out of the parking lot.<span style="mso-spacerun: yes;"> </span>Band-aids are the same way.<span style="mso-spacerun: yes;"> </span>Because of this her entire care team is in
agreement that a feeding tube would be a huge sensory challenge for her and she
would be trying to pull it out.<span style="mso-spacerun: yes;"> </span>She isn’t
at an age where we can reason with her about this yet.<span style="mso-spacerun: yes;"> </span>So the goal of inpatient is to increase her
volume of safe table foods.<span style="mso-spacerun: yes;"> </span>The foods
that she can eat are organic, free range chicken, fresh fruits and vegetables
and rice.<span style="mso-spacerun: yes;"> </span>Not very high calorie
foods.<span style="mso-spacerun: yes;"> </span>We need her to increase that
volume so she needs less medical formula.<span style="mso-spacerun: yes;">
</span></span></span></span></div>
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<tr><td class="tr-caption" style="text-align: center;">We took Gator to the vet this week to get a certificate of health for the hospital.<br />
He was perfect of course. Miss Grace saw a Christmas card from our friend Stephanie & her dog<br />
on the board at the vet. She got all excited and said, "Hey! Those are our friends!"</td></tr>
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<span style="font-family: Calibri;"><span class="editorialdate"><span lang="EN" style="color: #333333; mso-ansi-language: EN;"><span style="mso-spacerun: yes;"></span><o:p></o:p></span></span></span> </div>
<span class="editorialdate"><span lang="EN" style="color: #333333; mso-ansi-language: EN;"><span style="font-family: Calibri;">Many of you have asked how you can help us.<span style="mso-spacerun: yes;"> </span>We really need lots of prayer. Here are some
specifics.<o:p></o:p></span></span></span><br />
<br />
<div class="MsoListParagraphCxSpFirst" style="margin: 0in 0in 0pt 0.5in; mso-list: l0 level1 lfo1; text-indent: -0.25in;">
<!--[if !supportLists]--><span style="color: #333333; font-family: "Verdana","sans-serif"; mso-bidi-font-family: Verdana; mso-fareast-font-family: Verdana;"><span style="mso-list: Ignore;">1)<span style="font-size-adjust: none; font-stretch: normal; font: 7pt/normal "Times New Roman";"> </span></span></span><!--[endif]--><span style="font-family: Calibri;">Pray
for insurance approval.<span style="mso-spacerun: yes;"> </span>We have
fantastic insurance, but Miss Grace is a “high user” (we are the ones you don’t
want on your employers plan).<span style="mso-spacerun: yes;"> </span>We are
still waiting for approval for Tuesday admission.<span style="mso-spacerun: yes;"> </span>Please pray it goes through on time.<o:p></o:p></span></div>
<br />
<div class="MsoListParagraphCxSpMiddle" style="margin: 0in 0in 0pt 0.5in; mso-list: l0 level1 lfo1; text-indent: -0.25in;">
<!--[if !supportLists]--><span style="color: #333333; font-family: "Verdana","sans-serif"; mso-bidi-font-family: Verdana; mso-fareast-font-family: Verdana;"><span style="mso-list: Ignore;">2)<span style="font-size-adjust: none; font-stretch: normal; font: 7pt/normal "Times New Roman";"> </span></span></span><!--[endif]--><span style="font-family: Calibri;">Pray
for Cowpoke.<span style="mso-spacerun: yes;"> </span>My Mama heart hurts when I
have to leave him.<span style="mso-spacerun: yes;"> </span>He has a schedule in
place and we are thankful to everyone who has stepped up to help with him.<span style="mso-spacerun: yes;"> </span>It is compounded by 827 working 3-11pm each
day.<span style="mso-spacerun: yes;"> </span>He will really only see a parent/Daddy
before school.<span style="mso-spacerun: yes;"> </span>He is just 7 and that is
a lot, especially since there are a lot of unknowns on amount of time.<o:p></o:p></span></div>
<br />
<div class="MsoListParagraphCxSpMiddle" style="margin: 0in 0in 0pt 0.5in; mso-list: l0 level1 lfo1; text-indent: -0.25in;">
<!--[if !supportLists]--><span style="color: #333333; font-family: "Verdana","sans-serif"; mso-bidi-font-family: Verdana; mso-fareast-font-family: Verdana;"><span style="mso-list: Ignore;">3)<span style="font-size-adjust: none; font-stretch: normal; font: 7pt/normal "Times New Roman";"> </span></span></span><!--[endif]--><span style="font-family: Calibri;">Pray
for Grace to eat.<span style="mso-spacerun: yes;"> </span>Pray her body will
allow her to increase her volume.<span style="mso-spacerun: yes;"> </span>Pray
for her strength.<span style="mso-spacerun: yes;"> </span>Before her I never
realized the struggle with food.<span style="mso-spacerun: yes;"> </span>This disease
is debilitating and exhausting. <o:p></o:p></span></div>
<br />
<div class="MsoListParagraphCxSpMiddle" style="margin: 0in 0in 0pt 0.5in; mso-list: l0 level1 lfo1; text-indent: -0.25in;">
<!--[if !supportLists]--><span style="color: #333333; font-family: "Verdana","sans-serif"; mso-bidi-font-family: Verdana; mso-fareast-font-family: Verdana;"><span style="mso-list: Ignore;">4)<span style="font-size-adjust: none; font-stretch: normal; font: 7pt/normal "Times New Roman";"> </span></span></span><!--[endif]--><span style="font-family: Calibri;">Pray
for Gator.<span style="mso-spacerun: yes;"> </span>This will be his first bring
hospital stay.<span style="mso-spacerun: yes;"> </span>Pray that he will stay
focused on his girl.<span style="mso-spacerun: yes;"> </span>He loves kids and
kids love him.<span style="mso-spacerun: yes;"> </span>He needs to stay
focused.<span style="mso-spacerun: yes;"> </span>He is also used to getting some
good exercise each day and not being stuck in a hospital room.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
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<!--[if !supportLists]--><span style="color: #333333; font-family: "Verdana","sans-serif"; mso-bidi-font-family: Verdana; mso-fareast-font-family: Verdana;"><span style="mso-list: Ignore;">5)<span style="font-size-adjust: none; font-stretch: normal; font: 7pt/normal "Times New Roman";"> </span></span></span><!--[endif]--><span style="font-family: Calibri;">Pray
for me & 827.<span style="mso-spacerun: yes;"> </span>God is opening a lot
of doors for open our family. I am trying not to stress about timing but those
of you who know how type a I am know this is a challenge.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<br />
<div class="MsoListParagraphCxSpLast" style="margin: 0in 0in 10pt 0.5in; mso-list: l0 level1 lfo1; text-indent: -0.25in;">
<!--[if !supportLists]--><span style="color: #333333; font-family: "Verdana","sans-serif"; mso-bidi-font-family: Verdana; mso-fareast-font-family: Verdana;"><span style="mso-list: Ignore;">6)<span style="font-size-adjust: none; font-stretch: normal; font: 7pt/normal "Times New Roman";"> </span></span></span><!--[endif]--><span style="font-family: Calibri;">Pray
for our treatment time.<span style="mso-spacerun: yes;"> </span>The team says
they think we will need 4-6 weeks.<span style="mso-spacerun: yes;"> </span>Miss
Grace will turn 5 on Feb 20 and Cowpoke will be 8 on Feb 26. I really want to
be home for birthdays. I want to be able to plan parties and celebrate my
babies. <span style="mso-spacerun: yes;"> </span>Will you pray for that?<o:p></o:p></span></div>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhyAEfaOEUUQVcc9fUIzwZ6VsO2O5fZQuL6SjMXZPJKl1ReYx5E0vgbX6M1sG1S2OvjXzLLNDUwvirNu0qX-OSWb1FRzPhO3yLRMcplEb6Wvf1FHsNhcewXHZ46TgkqSH3oS5YRtTzrlvU/s1600/Bath+time+for+Gator.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhyAEfaOEUUQVcc9fUIzwZ6VsO2O5fZQuL6SjMXZPJKl1ReYx5E0vgbX6M1sG1S2OvjXzLLNDUwvirNu0qX-OSWb1FRzPhO3yLRMcplEb6Wvf1FHsNhcewXHZ46TgkqSH3oS5YRtTzrlvU/s1600/Bath+time+for+Gator.JPG" height="320" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Gator got a bath today after church so he is squeaky clean for the hospital.<br />
Doesn't he look thrilled?</td></tr>
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<span style="font-family: Calibri;">Several of you asked about having visitors.<span style="mso-spacerun: yes;"> </span>Visitors are welcome.<span style="mso-spacerun: yes;"> </span>You can text me. Grace will be pulled out for
therapy in 30 min increments 7 times a day, but you are welcome to come! Just
text my phone or e-mail me for address and access codes. <o:p></o:p></span></div>
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<span style="font-family: Calibri;">Thank you for your love and support!</span></div>
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvV1fjGMWx2Wp1-nfvW_0OHq0LQFa6uUBgZWdr366qmHXXjZQCshyphenhyphenA9iqTJxt7U68yX81z7Gf6KeInDtacTnT4oVei68oO0vKf7LdPPFTFnDDDvnBOHe1x8_Vqi0XORIHARFXQzQHLNj4/s1600/cuddle+time.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvV1fjGMWx2Wp1-nfvW_0OHq0LQFa6uUBgZWdr366qmHXXjZQCshyphenhyphenA9iqTJxt7U68yX81z7Gf6KeInDtacTnT4oVei68oO0vKf7LdPPFTFnDDDvnBOHe1x8_Vqi0XORIHARFXQzQHLNj4/s1600/cuddle+time.JPG" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">I am so thankful that they have each other. </td></tr>
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<span style="font-family: Calibri;"><o:p></o:p></span> </div>
Mama2Gracehttp://www.blogger.com/profile/12635949156093162181noreply@blogger.com0tag:blogger.com,1999:blog-1997083198217358711.post-4033028057717302612015-01-06T09:36:00.005-08:002015-01-06T09:36:49.897-08:00Happy 2015<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjwyv8EMjabrA_6-iJq9Ox3JM1wSCd_Pn2QLyZhE0PW-FOuuDhZrYM9nx0ihxyq5iGgTQVtCOTapHCCRPMFHdKTA8MhfiwC8mOa6K0CHd8YsiE-R475wZfzqWHyAY5sWTQI5XJYwNX6kp0/s1600/Happy+New+Year.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjwyv8EMjabrA_6-iJq9Ox3JM1wSCd_Pn2QLyZhE0PW-FOuuDhZrYM9nx0ihxyq5iGgTQVtCOTapHCCRPMFHdKTA8MhfiwC8mOa6K0CHd8YsiE-R475wZfzqWHyAY5sWTQI5XJYwNX6kp0/s1600/Happy+New+Year.jpg" height="309" width="320" /></a></div>
<br />
Miss Grace and Gator waited up to see the ball drop. She said she was waiting up for 827 who was on duty. All I know is that Mama was tired and Cowpoke was in bed by 9pm. She saw the ball drop and got her kiss from Mama. And she still waited up until almost 1:30am when her Daddy came home!<br />
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgbJpXYJ0LKFAR5u_oFMZM_tmULJI8xKPYDx5q5dZRAydahrtoVnuiJpuadyLnveek-88QW-uI9jZaEDcWIdBxxExoQR_HcDlhT2xBb7AkdoZtq6K7uON_x4wB2G8bmV_8mVPTXgwoNREk/s1600/Waiting+up+for+New+Years.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgbJpXYJ0LKFAR5u_oFMZM_tmULJI8xKPYDx5q5dZRAydahrtoVnuiJpuadyLnveek-88QW-uI9jZaEDcWIdBxxExoQR_HcDlhT2xBb7AkdoZtq6K7uON_x4wB2G8bmV_8mVPTXgwoNREk/s1600/Waiting+up+for+New+Years.JPG" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Not one single bit tired<br />
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We have been trying to get in a lot of family time. We are slated to go back into the hospital the week of January 19th for 4-6 weeks. (Please pray we are on the 4 week end of the spectrum.) We had to make the rounds of the LEGO stores looking for a specific piece (that cost $.55!) for Cowpoke's science project. Grace enjoyed playing in the LEGO bins. <br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgAer1vOyezk9n5r-yWmZxKZmJHLfG1kZUJVKU7P_9n5c6gle5m-bte7OoEGMIZ_hIwJ757i_6QnTsKQhPvnUGNWnp7uwKwXbqbZYOB8PDDVUuHGbnEdJGQzDMkgTmDU9kcyI4ra3MzVGI/s1600/LEGO+store.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgAer1vOyezk9n5r-yWmZxKZmJHLfG1kZUJVKU7P_9n5c6gle5m-bte7OoEGMIZ_hIwJ757i_6QnTsKQhPvnUGNWnp7uwKwXbqbZYOB8PDDVUuHGbnEdJGQzDMkgTmDU9kcyI4ra3MzVGI/s1600/LEGO+store.JPG" height="240" width="320" /></a></div>
<br />
It is back to school for the kids tomorrow and I will have the care conference about our inpatient stay. Praying for solid direction and strength for all of us to push through this time apart. Mama2Gracehttp://www.blogger.com/profile/12635949156093162181noreply@blogger.com0tag:blogger.com,1999:blog-1997083198217358711.post-4441883442636228172015-01-06T09:29:00.005-08:002015-01-06T09:29:51.909-08:00Gator is home and December in pictures<div class="separator" style="clear: both; text-align: left;">
We were all overjoyed with Mr. Jason (Gator's trainer) called and said Gator was ready to come home! It was a long three weeks and Grace missed him terribly. She cried every. single. day. Gator missed her too. We licked his legs and gave himself some hotspots/bald spots in several places. We are all glad to have him home! </div>
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December FLEW by so here is a recap of our month in pictures . . . . </div>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhx9aJ9BPX32FqssqQg3I8JI4FDJUs1qNKAATUnqJiCde8VvCRpZWOMsQFUqmsx_nuNq6Bgpc3kbK3ygFyE8gf-sOKDno69OqG9Y5L3qZX6-qquUCo8g_5KImFgGvrZp6Vm2ZM-6COv8as/s1600/Advent+devotional.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhx9aJ9BPX32FqssqQg3I8JI4FDJUs1qNKAATUnqJiCde8VvCRpZWOMsQFUqmsx_nuNq6Bgpc3kbK3ygFyE8gf-sOKDno69OqG9Y5L3qZX6-qquUCo8g_5KImFgGvrZp6Vm2ZM-6COv8as/s1600/Advent+devotional.JPG" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Enjoying the Advent Devotional from our church</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhguFKYRgx0CvZcxxK1OR2GhSXtVXZKF1XeBkl_QAvCzaLskFStewBV-GZeeY4jIJdRNVL1qTMjFicpEgGqTO1wib28GYvHFS8N7111Hy1hCNzCGTR7ugrA9u5-A-OZuU-2Y4-c4eBuosY/s1600/Annie+Movie+1.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhguFKYRgx0CvZcxxK1OR2GhSXtVXZKF1XeBkl_QAvCzaLskFStewBV-GZeeY4jIJdRNVL1qTMjFicpEgGqTO1wib28GYvHFS8N7111Hy1hCNzCGTR7ugrA9u5-A-OZuU-2Y4-c4eBuosY/s1600/Annie+Movie+1.JPG" height="320" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">We went to Studio Movie Grill to see ANNIE! (It was fabulous and we all loved it!)</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjorRkCRqP8NHaQeIneBANboaXj_x-XS0sLzEWd016FdDgVU-01uRbB7_TMbFn6_s0CpCY09r0jSbGa5k2ADpNUfjQELpusUEyPN6OuhDfvKtfTngi23qIivrdjYD9LamZrnsFLypajK2g/s1600/Aunts+and+Uncles,+Nieces+and+Nephews.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjorRkCRqP8NHaQeIneBANboaXj_x-XS0sLzEWd016FdDgVU-01uRbB7_TMbFn6_s0CpCY09r0jSbGa5k2ADpNUfjQELpusUEyPN6OuhDfvKtfTngi23qIivrdjYD9LamZrnsFLypajK2g/s1600/Aunts+and+Uncles,+Nieces+and+Nephews.JPG" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Family Christmas Eve Eve Celebration</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEikuC_l3yk-F0SKRQwIBpBF-gyFVjLH1DZVD7oxmiLmw5VIyTXKOH9ZHQu1TS7uw0Qimp0uNap6vnEpNL2yWj2DDyHsrmkUgL_nPXxSatsQaWISHOC_3hSdINYUraqkQ8_qxr_EoU-LSRE/s1600/Bubble+bath.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEikuC_l3yk-F0SKRQwIBpBF-gyFVjLH1DZVD7oxmiLmw5VIyTXKOH9ZHQu1TS7uw0Qimp0uNap6vnEpNL2yWj2DDyHsrmkUgL_nPXxSatsQaWISHOC_3hSdINYUraqkQ8_qxr_EoU-LSRE/s1600/Bubble+bath.JPG" height="320" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Starting the day with a warm bubble bath and a Santa beard</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi5rf2bVwrEwSTD3bDAhy_ieoIgFIDGXa2f-DTfOl0mwlaItRoeMxgKwBaWoXCAwP5xhRdRqWn-HAtmmDHkIqRrys4Dk8AnHW7pjHLJI2raabt4uQR3hD-hOIrxjg4hmCyIKiYWAnTJfHg/s1600/Christkindle+market+1.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi5rf2bVwrEwSTD3bDAhy_ieoIgFIDGXa2f-DTfOl0mwlaItRoeMxgKwBaWoXCAwP5xhRdRqWn-HAtmmDHkIqRrys4Dk8AnHW7pjHLJI2raabt4uQR3hD-hOIrxjg4hmCyIKiYWAnTJfHg/s1600/Christkindle+market+1.JPG" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Texas Christkindl Market at the Ball Park at Arlington -<br />
Teaching my babies about the Christmases I had in Germany as a child</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhZBvMk0zqyuwzoRwAWnJvndOgWwNLp_HnPn-sD1-qjKfcxaB0tvQ3AOKddHgUd62KIw-jNR8uj4rFWH9fcvHvbalsM4YrCSkVayt7Q-flWqWKLv20LqaA7PmfjyWc1vDeuiM3QILoJpG8/s1600/Christkindle+market+2.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhZBvMk0zqyuwzoRwAWnJvndOgWwNLp_HnPn-sD1-qjKfcxaB0tvQ3AOKddHgUd62KIw-jNR8uj4rFWH9fcvHvbalsM4YrCSkVayt7Q-flWqWKLv20LqaA7PmfjyWc1vDeuiM3QILoJpG8/s1600/Christkindle+market+2.JPG" height="320" width="256" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Texas Christkindl Market at the Ball Park at Arlington -<br />
Teaching my babies about the Christmases I had in Germany as a child</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgGwq4rzo03Yb6mb1ApbqdbO_P2UYcsqCC6NLqD8XibfH73tTPTzjVUENGN7LoFDc1fCvo8xkDXYKHZZ2Ost9n5NfcByYjbhWz1oO9rjMDdRJLi5LNRMzlJFu4gMxHuGEBc4rGq2lhxXBE/s1600/Christmas+breakfast+with+friends.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgGwq4rzo03Yb6mb1ApbqdbO_P2UYcsqCC6NLqD8XibfH73tTPTzjVUENGN7LoFDc1fCvo8xkDXYKHZZ2Ost9n5NfcByYjbhWz1oO9rjMDdRJLi5LNRMzlJFu4gMxHuGEBc4rGq2lhxXBE/s1600/Christmas+breakfast+with+friends.JPG" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Annual Christmas Celebration Breakfast with our friends!</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhcHzx67HWsASUXvIi7mOMkZy7AwFqC94vCTfTyu3WshOYAdd5kpgeIvwbl0zhnLjNh33C51EfDpMs_wZRFOMekVtIzGgpy1vtqYsgiU2jdvXHXLpgf5Z1ePcEEn0DxJimPPm0X1Ul9SCQ/s1600/Christmas+Day+1.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhcHzx67HWsASUXvIi7mOMkZy7AwFqC94vCTfTyu3WshOYAdd5kpgeIvwbl0zhnLjNh33C51EfDpMs_wZRFOMekVtIzGgpy1vtqYsgiU2jdvXHXLpgf5Z1ePcEEn0DxJimPPm0X1Ul9SCQ/s1600/Christmas+Day+1.jpg" height="320" width="319" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Santa came and brought that FROZEN castle!</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjxL4IacEVGxsPpmiTC-BTMU_SX6BS6vr_uEA_hGSxANGiZOmrE29qfrytoeCtt5ZdBJQjMcbtsAtkWNFUyyPwAXNfvxPXTSQTzVr9MGFRV3JfJtxz9WqeQRUpAEnwVkVW9_UFaORffnKQ/s1600/Christmas+Day+2.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjxL4IacEVGxsPpmiTC-BTMU_SX6BS6vr_uEA_hGSxANGiZOmrE29qfrytoeCtt5ZdBJQjMcbtsAtkWNFUyyPwAXNfvxPXTSQTzVr9MGFRV3JfJtxz9WqeQRUpAEnwVkVW9_UFaORffnKQ/s1600/Christmas+Day+2.JPG" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">It was the first year Grace enjoyed opening gifts!</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjm_8fvykoXqM6-t2bTdxG9MLlNIlIQfransvQtA9S_MoqfReJNUdAahOBbjUBFe9TYChv6dZzt_qk4-PNtWfIt8ll4bUjUxyxx9i8lnAAoBcUrv6nOAJ-YNv5W8oFdqwj2Ptot1g-BFVk/s1600/Christmas+Day+3.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjm_8fvykoXqM6-t2bTdxG9MLlNIlIQfransvQtA9S_MoqfReJNUdAahOBbjUBFe9TYChv6dZzt_qk4-PNtWfIt8ll4bUjUxyxx9i8lnAAoBcUrv6nOAJ-YNv5W8oFdqwj2Ptot1g-BFVk/s1600/Christmas+Day+3.JPG" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Gator and his Christmas bow</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhrIHrSG-glQa8A0k2Q6FYHMzUQsto1hBbNatBYkUV50AyLRE313seTI-g1PTP64HPxKvP46a6vEr4XXUu9cyr-AqjVVMFnAYhRjrEwAeBIJBYtza-Ht_MfadpgJr2bSTKrOnJYCJfxBzY/s1600/Christmas+Day+4.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhrIHrSG-glQa8A0k2Q6FYHMzUQsto1hBbNatBYkUV50AyLRE313seTI-g1PTP64HPxKvP46a6vEr4XXUu9cyr-AqjVVMFnAYhRjrEwAeBIJBYtza-Ht_MfadpgJr2bSTKrOnJYCJfxBzY/s1600/Christmas+Day+4.JPG" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">It was a FROZEN kind of Christmas</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_eM2bXx4HyJ_1GZxGHHZtNeGZcr3Pmk0EOjlded1Fc3XxMBp_1AhCDFMYkTcmeitGrclkrkbHRY4uWdcNjIlabDI00I0oGrvpW2wsDF4Z-ZinSOYgQieYpRaqA4L_2J64Cju-P6KbFWg/s1600/Christmas+flowers.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_eM2bXx4HyJ_1GZxGHHZtNeGZcr3Pmk0EOjlded1Fc3XxMBp_1AhCDFMYkTcmeitGrclkrkbHRY4uWdcNjIlabDI00I0oGrvpW2wsDF4Z-ZinSOYgQieYpRaqA4L_2J64Cju-P6KbFWg/s1600/Christmas+flowers.JPG" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Trying to do a scheduled feed during the middle of family Christmas can ne a challenge</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhjkimNFloy_lt6j2t-zcPJN9way_7PzjN61mMwoGH2hJ4ssDU2KfZe5UFjsceCPMMEMpHlOLKbhSppYksih58sOjBy6fPpudPxWm2XvFkj0YSGGlFAxEaebat_bP4c99mr45dhCdSu3Jk/s1600/Christmas+light+parade+1.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhjkimNFloy_lt6j2t-zcPJN9way_7PzjN61mMwoGH2hJ4ssDU2KfZe5UFjsceCPMMEMpHlOLKbhSppYksih58sOjBy6fPpudPxWm2XvFkj0YSGGlFAxEaebat_bP4c99mr45dhCdSu3Jk/s1600/Christmas+light+parade+1.JPG" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Christmas Light Parade in Ennis, Texas</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgeS5T2ssRKitVMbip-2oSyRCWTUkQFMs0U1FClXCNxvqObkYgr_vacUnDeiIs-aAbh_ooG2a3lQWvPF45K0jjeP7v3o2Wyz-YSaCckdwjQ5FK2CoL03a9elOxgVKS45x8tsVR31qYiUBE/s1600/Christmas+light+parade+2.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgeS5T2ssRKitVMbip-2oSyRCWTUkQFMs0U1FClXCNxvqObkYgr_vacUnDeiIs-aAbh_ooG2a3lQWvPF45K0jjeP7v3o2Wyz-YSaCckdwjQ5FK2CoL03a9elOxgVKS45x8tsVR31qYiUBE/s1600/Christmas+light+parade+2.JPG" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">"Santa! I see you!"<br />
Christmas Light Parade in Ennis, Texas</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgQyn0cno_NygQYZPvLxnWaJ1_oQz1HJ2XjZOwpaBHHDpL_lS9zh-t4A3Goocg3SdT7fs9labA-BC-IwNZs3sQs_RkZi6psnrmlJD0nQd06nGv1ARwR8ZxAc6U2-m3sBsgqTrZ-X-5PWEw/s1600/Christmas+light+parade+3.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgQyn0cno_NygQYZPvLxnWaJ1_oQz1HJ2XjZOwpaBHHDpL_lS9zh-t4A3Goocg3SdT7fs9labA-BC-IwNZs3sQs_RkZi6psnrmlJD0nQd06nGv1ARwR8ZxAc6U2-m3sBsgqTrZ-X-5PWEw/s1600/Christmas+light+parade+3.JPG" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Christmas Light Parade in Ennis, Texas</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg5uZxdgxfgEOinVYVuEhb_HUJIF0fIxVEs8pYS6wu2MfCEEkAMyn98s1LE8ZInupX5kSPlcz-4GqUKKOXnTd1vw6nxzymopSuQVWgjKPLGC0-cVzAlwo7bPpIkYod0p0jicJ4lb6qw8QY/s1600/Christmas+light+parade+4.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg5uZxdgxfgEOinVYVuEhb_HUJIF0fIxVEs8pYS6wu2MfCEEkAMyn98s1LE8ZInupX5kSPlcz-4GqUKKOXnTd1vw6nxzymopSuQVWgjKPLGC0-cVzAlwo7bPpIkYod0p0jicJ4lb6qw8QY/s1600/Christmas+light+parade+4.JPG" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Christmas Light Parade in Ennis, Texas</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgez6oqnUcVdshFY0K-JGyLtsaITYXHiwiMignavB2HEx7E_o7eLZfrZJquC1ipW_TbLFOCp9eaoWNBnSUDPUyUVqcN76f2eOx3MBb6x0Ba1dInUhQ4HoxNWSMYxlJgLdoxAQ1MiCC79CI/s1600/Christmas+tree+2014.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgez6oqnUcVdshFY0K-JGyLtsaITYXHiwiMignavB2HEx7E_o7eLZfrZJquC1ipW_TbLFOCp9eaoWNBnSUDPUyUVqcN76f2eOx3MBb6x0Ba1dInUhQ4HoxNWSMYxlJgLdoxAQ1MiCC79CI/s1600/Christmas+tree+2014.JPG" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">We have a live Christmas Tree tradition.</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgt_gRHUYW3JHUWkna3SccU7ju0arUBqPRUdhZdIbaWQYZTDHUTBm2gzDdR_-8_uLYHrxWmtHY3SZ4hpC9xT3-g31Wdl3uC3iTssQWzLn0JHq0uOSKy8LKkt-dBRDHHOjCb_ix8_QkIV64/s1600/Cowpoke+baptism.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgt_gRHUYW3JHUWkna3SccU7ju0arUBqPRUdhZdIbaWQYZTDHUTBm2gzDdR_-8_uLYHrxWmtHY3SZ4hpC9xT3-g31Wdl3uC3iTssQWzLn0JHq0uOSKy8LKkt-dBRDHHOjCb_ix8_QkIV64/s1600/Cowpoke+baptism.JPG" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Sunday, December 21, 2014<br />
Cowpoke's baptism<br />
We were so excited and proud of our boy and his decision to follow Jesus!</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg3qWs7qQe9e1oYWkDYqGhaLqsruly5wYqyqJWy_C4AdFXwURJFZ-G98HOauC0WQy0ut-4_Ipj1YstJgk9SMBAwV1TdHd2J63is_pHfiPuvowUEgQuVJ7XGmxPIY_IdtMAXreB8DFzAVcc/s1600/Crazy+Christmas+light+nativity.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg3qWs7qQe9e1oYWkDYqGhaLqsruly5wYqyqJWy_C4AdFXwURJFZ-G98HOauC0WQy0ut-4_Ipj1YstJgk9SMBAwV1TdHd2J63is_pHfiPuvowUEgQuVJ7XGmxPIY_IdtMAXreB8DFzAVcc/s1600/Crazy+Christmas+light+nativity.JPG" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Crazy Christmas Light House in University Park<br />
Her muscles were cramping in the car that is why she is braceless and shoeless.</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiNuASI-P99t-IwB_JsFs3FCttQ8FIKE4L0A18Wr7OYv2layxyzZGQOpF5-NcLxwB_TdKOlZTMbNt5of2viwfQdElsVPPf3sMSQE88pZd2tsUGn4Mjmwrg-KeJr8MNvN-uieON2oG0aGMY/s1600/Crazy+Christmas+lights+1.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiNuASI-P99t-IwB_JsFs3FCttQ8FIKE4L0A18Wr7OYv2layxyzZGQOpF5-NcLxwB_TdKOlZTMbNt5of2viwfQdElsVPPf3sMSQE88pZd2tsUGn4Mjmwrg-KeJr8MNvN-uieON2oG0aGMY/s1600/Crazy+Christmas+lights+1.JPG" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Crazy Christmas Light House in University Park</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj9ESPL02G9EU9mZ5LB6OtRpv7ObLmFDG4FskMYQksaIf0-zIfyV_56PRjuL_rS7pPmjdj-ybxhf-tYwz_0nGrCAt7QvILddP6yIOrGiD8tqbJRObSD2LTwM5DDuOXYAkCJtk1A7UfIy4M/s1600/Dec++27+Piano+with+YankPo.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj9ESPL02G9EU9mZ5LB6OtRpv7ObLmFDG4FskMYQksaIf0-zIfyV_56PRjuL_rS7pPmjdj-ybxhf-tYwz_0nGrCAt7QvILddP6yIOrGiD8tqbJRObSD2LTwM5DDuOXYAkCJtk1A7UfIy4M/s1600/Dec++27+Piano+with+YankPo.JPG" height="320" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Playing the piano with Yank-Po</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhlmAGIsbI6ggV9kzjfCCizbuhAskXd3R2G2XJERFIBgifETHepA83fXWpIX_uIFqrzr1XLvr8cfnY66QCB6z2xZn58vWmfilW6iqEGlFDe9TfzEBgb43yw-baC0Usef-BNBGlYm9pHZVE/s1600/Directing+light+installation.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhlmAGIsbI6ggV9kzjfCCizbuhAskXd3R2G2XJERFIBgifETHepA83fXWpIX_uIFqrzr1XLvr8cfnY66QCB6z2xZn58vWmfilW6iqEGlFDe9TfzEBgb43yw-baC0Usef-BNBGlYm9pHZVE/s1600/Directing+light+installation.JPG" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Directing 827 as he put the Christmas lights on the house</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEglAd7tevxdeDEfbXOovTEfBpZJz1YocqHEfUN3UWV31tJ8h4V4BgGDjBGSnDDiQppPJGnrAmtlGmzk0h4iUJl6gkzSmlt89npUS7RXeZFDR1N_JfJwm1qB_MT3G-dpzKoLopUm-sPCD2c/s1600/Gingerbread+family.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEglAd7tevxdeDEfbXOovTEfBpZJz1YocqHEfUN3UWV31tJ8h4V4BgGDjBGSnDDiQppPJGnrAmtlGmzk0h4iUJl6gkzSmlt89npUS7RXeZFDR1N_JfJwm1qB_MT3G-dpzKoLopUm-sPCD2c/s1600/Gingerbread+family.JPG" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Gingerbread family with Yank-Po and Grammy</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhtl5nIn1rLwNO8CiLwocFmXDYWhKjzQNhEY18ULAR19ho2isuMFbszyQbzne9br33WOQ-c8uf9U8W53R8FE8cNrbORzwMgB-M-KKw8GpOlZvML80uGm_erpU_4RhCFU4G4PoubrvhRiDI/s1600/Gingerbread+with+Grammy.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhtl5nIn1rLwNO8CiLwocFmXDYWhKjzQNhEY18ULAR19ho2isuMFbszyQbzne9br33WOQ-c8uf9U8W53R8FE8cNrbORzwMgB-M-KKw8GpOlZvML80uGm_erpU_4RhCFU4G4PoubrvhRiDI/s1600/Gingerbread+with+Grammy.JPG" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Carefully choosing decorations<br />
(No gingerbread or candy were consumed in the making of these men.<br />
In fact that night the gingerbread family "ran away" never to be seen again!)</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg8X3bS122t84u-u6QTShebbbr_BXWUlHSmlBenedSsbzoTDnVTbIAVhPtI9G5LJSsE_MFk8jrSbq2uliHF7uhQE10OM7iUUzE4WsPXbV6kSKVYfmNGlmONqC3Dj4_d9C1jYaEP2UpWdQo/s1600/Granny+Bea's%2Bnativity.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg8X3bS122t84u-u6QTShebbbr_BXWUlHSmlBenedSsbzoTDnVTbIAVhPtI9G5LJSsE_MFk8jrSbq2uliHF7uhQE10OM7iUUzE4WsPXbV6kSKVYfmNGlmONqC3Dj4_d9C1jYaEP2UpWdQo/s1600/Granny+Bea's%2Bnativity.JPG" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">4th Generation to love this nativity</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj1KbxHfxhqBykQ9jsFSTakB2Hcg__CB1o2pKclum_LIMUN-E58utucZrYUB7-MkKL6i4nnH1oae5a0ie6zQqrQM23nz7d0yonrWjZUSNhwcBrdA0yTSCqcH859EEne-bDIobwYNAZBcD0/s1600/Jesus+in+nativity.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj1KbxHfxhqBykQ9jsFSTakB2Hcg__CB1o2pKclum_LIMUN-E58utucZrYUB7-MkKL6i4nnH1oae5a0ie6zQqrQM23nz7d0yonrWjZUSNhwcBrdA0yTSCqcH859EEne-bDIobwYNAZBcD0/s1600/Jesus+in+nativity.JPG" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Grace thought her Jesus doll was a better fit for the nativity</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhCMXdSbWRY5sTScdn5XckOOxdituO_94705ZYY1xaSF_r0SbRQKD_flQJVHhKvak3m035Qrraq8r2as0HxxkwTCaGboNktGDrFCVcZHwO_cW8tY0Bm_-g29MYWY9lkUerOL3RNhOTLXKo/s1600/letters+to+santa.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhCMXdSbWRY5sTScdn5XckOOxdituO_94705ZYY1xaSF_r0SbRQKD_flQJVHhKvak3m035Qrraq8r2as0HxxkwTCaGboNktGDrFCVcZHwO_cW8tY0Bm_-g29MYWY9lkUerOL3RNhOTLXKo/s1600/letters+to+santa.JPG" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Mailing her letter to Santa and not in the mood for pictures</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9Fvwk-QrWvmqMDCv9INV772ic4EKm2Xw5Cz7hjekfhC6vFoEZroiBeCBHUusxeJhTsHQhn7G0EO_i41lwY4g1nwE1-hWZT5Iv2DZ_tlYNlxYay6OxhPupJGujU4ISfQ4S2_UXYkbQv2w/s1600/Making+Olaf.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9Fvwk-QrWvmqMDCv9INV772ic4EKm2Xw5Cz7hjekfhC6vFoEZroiBeCBHUusxeJhTsHQhn7G0EO_i41lwY4g1nwE1-hWZT5Iv2DZ_tlYNlxYay6OxhPupJGujU4ISfQ4S2_UXYkbQv2w/s1600/Making+Olaf.JPG" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">She made a safe and edible Olaf</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjuUPMuHZtioqVa-wZxYLa1-GyEDOvW6bb3EJA4GYuO52uL1RbbVa7tGwEi-GvH8wMv-cNcrmJSCcv9Gmg78mMJ86NALH-xvB_BTuX5pOfqLHh86P2El6vu6ZUnyyH4OI7JXsCAuNBAfhk/s1600/Matching+shoes.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjuUPMuHZtioqVa-wZxYLa1-GyEDOvW6bb3EJA4GYuO52uL1RbbVa7tGwEi-GvH8wMv-cNcrmJSCcv9Gmg78mMJ86NALH-xvB_BTuX5pOfqLHh86P2El6vu6ZUnyyH4OI7JXsCAuNBAfhk/s1600/Matching+shoes.JPG" height="207" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Matching shoes </td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhW9DZEsYFEZfmPLiuR9DRyR2l1MDhUAccEb6ILZCNNC7oTIGfPXof1JLAuHxPc8rSfJ-edDVZpK-cKRAplVl8_UTr6M2W8n9OvYOmgkZi2Y6w6XjGFHo5cZDkS6B9gO8zVohDnF0zCNb0/s1600/PreK+Christmas+Party+2.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhW9DZEsYFEZfmPLiuR9DRyR2l1MDhUAccEb6ILZCNNC7oTIGfPXof1JLAuHxPc8rSfJ-edDVZpK-cKRAplVl8_UTr6M2W8n9OvYOmgkZi2Y6w6XjGFHo5cZDkS6B9gO8zVohDnF0zCNb0/s1600/PreK+Christmas+Party+2.JPG" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Christmas party at school</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhiwvhyLyEB3tY41eP9eRHftAN1pXSJvAMRu6Rndl92zHmqjmr2Eownw0ypkmKywyhm3iV9TeQtq-LviQkO4IzCelODXuMoAjIitPJGVOrMdSdoR3MtAr0bQtm5YXJTZTsUhyphenhyphen3fyza_I48/s1600/PreK+Christmas+Party.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhiwvhyLyEB3tY41eP9eRHftAN1pXSJvAMRu6Rndl92zHmqjmr2Eownw0ypkmKywyhm3iV9TeQtq-LviQkO4IzCelODXuMoAjIitPJGVOrMdSdoR3MtAr0bQtm5YXJTZTsUhyphenhyphen3fyza_I48/s1600/PreK+Christmas+Party.JPG" height="320" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Reindeer camp!</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_Ud1RNCjW7Wh_rIwgo2QOOqht5IhWNFekeCpzCrBsjzeg_7yjYIRQXckEGGN4owuZUQw-JYXwVajBtlhPVLuXMuk9nKvyPM0k6cyx54_V3zhOTjD2056R0mEsFvg9A5wtmzJoVtHaNE8/s1600/PT+with+Gator.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi_Ud1RNCjW7Wh_rIwgo2QOOqht5IhWNFekeCpzCrBsjzeg_7yjYIRQXckEGGN4owuZUQw-JYXwVajBtlhPVLuXMuk9nKvyPM0k6cyx54_V3zhOTjD2056R0mEsFvg9A5wtmzJoVtHaNE8/s1600/PT+with+Gator.JPG" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">PT with Gator Dog</td></tr>
</tbody></table>
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<div class="separator" style="clear: both; text-align: center;">
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi9Sp__NbnOkIKbD9WSezQvlHTbEJuJ1pBrWf-Pt5DiA5PkZB4oqP8CIb935iYhziigjFOms3dbkJAb-YaYti1d2Re5Azob_7RcApxeVNEoijBsjDebHBLgmxQTxOi71xO_K8a3aShjeo8/s1600/Santa+2014+at+TMS.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi9Sp__NbnOkIKbD9WSezQvlHTbEJuJ1pBrWf-Pt5DiA5PkZB4oqP8CIb935iYhziigjFOms3dbkJAb-YaYti1d2Re5Azob_7RcApxeVNEoijBsjDebHBLgmxQTxOi71xO_K8a3aShjeo8/s1600/Santa+2014+at+TMS.JPG" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">SANTA! 2014<br />
Texas Motor Speedway</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjxqFE_mXgj6Ynfxi5qzGNM_j8_qOJXtzklYeoMNOMDvLv2LDzAb8BTA0Vxx0MyYa-EnGso58f1s8J2EsCMNdhjKK3q2_EIUf_bxJ2teF7VLa51Uxr-8NZ5AYOW1SPOasQCqao7bbxS5wU/s1600/Snow+at+FBC+Texas+Style+1.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjxqFE_mXgj6Ynfxi5qzGNM_j8_qOJXtzklYeoMNOMDvLv2LDzAb8BTA0Vxx0MyYa-EnGso58f1s8J2EsCMNdhjKK3q2_EIUf_bxJ2teF7VLa51Uxr-8NZ5AYOW1SPOasQCqao7bbxS5wU/s1600/Snow+at+FBC+Texas+Style+1.JPG" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Snow fun provided by the local First Baptist Church</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiLW0DmvJWqTMlYKcw3v4_wmcoloHYF9nuKfCtXU1gLevw3tvI_vdfgZOEt7CCwM2xIkL1nUaQKbh550ZGcX_d31w5b4ROzy671VrzScW0PXwj-FCwShxm1D6pIEwo-vMZbGg21zy0YiD8/s1600/Snow+at+FBC+Texas+Style+2.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiLW0DmvJWqTMlYKcw3v4_wmcoloHYF9nuKfCtXU1gLevw3tvI_vdfgZOEt7CCwM2xIkL1nUaQKbh550ZGcX_d31w5b4ROzy671VrzScW0PXwj-FCwShxm1D6pIEwo-vMZbGg21zy0YiD8/s1600/Snow+at+FBC+Texas+Style+2.JPG" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Snow fun provided by the local First Baptist Church</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi66FFn77xqYjE7vMc3U5uOflXrVEFaTuZ2oTbX7nPC_Qx__lH4QAqEsAT36Zi1gXgt5Kc5pfm5-q1UE2zyAhssfpy9K0dnvbSJw9vBENN0UxyHQWMD8RnV4FrHxaEi6wqjfC-ht1xBqCk/s1600/therapy+christmas+tree.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi66FFn77xqYjE7vMc3U5uOflXrVEFaTuZ2oTbX7nPC_Qx__lH4QAqEsAT36Zi1gXgt5Kc5pfm5-q1UE2zyAhssfpy9K0dnvbSJw9vBENN0UxyHQWMD8RnV4FrHxaEi6wqjfC-ht1xBqCk/s1600/therapy+christmas+tree.JPG" height="320" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Christmas tree at therapy</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjkByYUFdPXFRVmaJdGShXOf9rNbtR4rD3yogoXUMfo9AENVdCRL9G5puSmoOF_sHqPxHvjPry4V3pymJ3pLA3h270yUdY8_yIEZkC5GGqOrrtbn83oKmSh08AB9fJ4U5_a-HjJkgwtY24/s1600/Variety+Christmas+Party.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjkByYUFdPXFRVmaJdGShXOf9rNbtR4rD3yogoXUMfo9AENVdCRL9G5puSmoOF_sHqPxHvjPry4V3pymJ3pLA3h270yUdY8_yIEZkC5GGqOrrtbn83oKmSh08AB9fJ4U5_a-HjJkgwtY24/s1600/Variety+Christmas+Party.JPG" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Variety, the Children's Charity of Texas Christmas Celebration!</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjkVGWYsnFge3vybZMTL1MSCItt_uO11lhr1w9-l-dYe558wn9NbamxQBpQZxIG9EBGZg4Wrzm7Gd1j6KSNKga2HKIimWpggeU5-hFZWQlJNhOK8uinZjqNtzh2WYHRubcCstQCGQVN0CI/s1600/Variety+Party+with+Santa.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjkVGWYsnFge3vybZMTL1MSCItt_uO11lhr1w9-l-dYe558wn9NbamxQBpQZxIG9EBGZg4Wrzm7Gd1j6KSNKga2HKIimWpggeU5-hFZWQlJNhOK8uinZjqNtzh2WYHRubcCstQCGQVN0CI/s1600/Variety+Party+with+Santa.JPG" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Variety, the Children's Charity of Texas Christmas Celebration!<br />
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<span style="color: #990000; font-size: x-large;"><em>Wishing you and yours a very</em></span><br />
<span style="color: #990000; font-size: x-large;"><em>Merry Christmas!</em></span><br />
<span style="color: #990000; font-size: x-large;"><em>Love,</em></span><br />
<span style="color: #990000; font-size: x-large;"><em>Grace & Gator,</em></span><br />
<span style="color: #990000; font-size: x-large;"><em>827, Cowpoke and Mama</em></span><br />
<h2>
<span style="font-family: Georgia, "Times New Roman", serif; font-size: x-large;"></span> </h2>
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<br />Mama2Gracehttp://www.blogger.com/profile/12635949156093162181noreply@blogger.com0tag:blogger.com,1999:blog-1997083198217358711.post-8408793533208704002014-11-18T11:34:00.005-08:002014-11-18T11:40:39.719-08:00Melancholy Girl and FROZEN paraodySo on Saturday we left Gator with Mr. Jason in Boyd for 2-3 weeks more of training. He was a super fast learner when we was in training before so we are hoping he still is. We went to Cabella's on the way to Boyd, Texas.<br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiN3Mmm1YterGj1PgahT2MxPKlPw_Mmfe8zKVcX59HX6dAoImHb7aSKDhQ00WiV_irNmsSbGTSoUV5pw6eDNLeL8bur4ZUoke6AGbQeT1ttB1C7ea5pksWvrqsizhM1txZYgeF2r14B0qo/s1600/Cabella+shopper.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiN3Mmm1YterGj1PgahT2MxPKlPw_Mmfe8zKVcX59HX6dAoImHb7aSKDhQ00WiV_irNmsSbGTSoUV5pw6eDNLeL8bur4ZUoke6AGbQeT1ttB1C7ea5pksWvrqsizhM1txZYgeF2r14B0qo/s1600/Cabella+shopper.JPG" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Shopping with Daddy & Gator Dog<br />
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After we left Cabella's we told her we had about 40 more minutes and we had to leave Gator. We had been talking about this for almost two weeks, but now she realized we were serious and she was not happy at all. <br />
<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjHQwxMPwJMnAf0XzCMlXJGIAnOXEh_9k3V2H9uDxKlKb4OCBIP-EpmDdaG97cXNO2fd9M9Zu0lUor4LYwIxay0is3Y76DPIi2_hB2oj7ftbHBM8YPdsBHOF6rkmy0lU-g0xuILpi2QvYs/s1600/Gator+loving.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjHQwxMPwJMnAf0XzCMlXJGIAnOXEh_9k3V2H9uDxKlKb4OCBIP-EpmDdaG97cXNO2fd9M9Zu0lUor4LYwIxay0is3Y76DPIi2_hB2oj7ftbHBM8YPdsBHOF6rkmy0lU-g0xuILpi2QvYs/s1600/Gator+loving.JPG" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">I love my Gator Dog!</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhH-PihuFtfj9AFkiyFVj2cCcCspxenHKeo2KE3h3RXRHN07P76g0IVknsFdMQFJar5LGS_VgP6sQTTh4p0zBmxQnbyQzWgvfRCClTe-W70znki8BR1GgDYEORXOikH09Jl1wniu7tQUeo/s1600/I+changed+my+mind.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhH-PihuFtfj9AFkiyFVj2cCcCspxenHKeo2KE3h3RXRHN07P76g0IVknsFdMQFJar5LGS_VgP6sQTTh4p0zBmxQnbyQzWgvfRCClTe-W70znki8BR1GgDYEORXOikH09Jl1wniu7tQUeo/s1600/I+changed+my+mind.JPG" height="320" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Uh-uo . . . This is really about to happen?<br />
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So we left Gator and are praying he does his refresher and learns his new skills quickly. Miss Grace is NOT at all happy that he is gone and she has been emotional and having meltdowns like we have not seen in a long time. Pray for her. Pray for Gator as I know he misses her. Pray for me and 827. The days are dragging by. I had come to take for granted the ease at which we were finally adjusting too. <br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh95uPdah3gsOfL2mZfqKCZD_6y8jKS7ZnyhMgXNA9avs_GCcQTrAH2WEks8n0zqeggjv8Ssn8uJ7kmwM5T2qrfjKfYqfR4FytbqEK9zKaBOAMZYrsx0KJxiWd64CwYe6WW46p7BkXZWHc/s1600/melancholy+girl.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh95uPdah3gsOfL2mZfqKCZD_6y8jKS7ZnyhMgXNA9avs_GCcQTrAH2WEks8n0zqeggjv8Ssn8uJ7kmwM5T2qrfjKfYqfR4FytbqEK9zKaBOAMZYrsx0KJxiWd64CwYe6WW46p7BkXZWHc/s1600/melancholy+girl.JPG" height="320" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Melancholy girl</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEge5XEPgOt82GmqzZR_PQVLgxnw1PXUB6XHbEaiutoY9rXbeuull2DkPNTwX72PvpxjPz-BUJLtz0stFwKvUru3sAM7brhND1ZS7HXzyDQnJe0lqxtX7DrL88NkHFzyarzeioEP5zbQpsc/s1600/shaving+cream+letters.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEge5XEPgOt82GmqzZR_PQVLgxnw1PXUB6XHbEaiutoY9rXbeuull2DkPNTwX72PvpxjPz-BUJLtz0stFwKvUru3sAM7brhND1ZS7HXzyDQnJe0lqxtX7DrL88NkHFzyarzeioEP5zbQpsc/s1600/shaving+cream+letters.JPG" height="320" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Practicing our letter writing in shaving cream. Pre-K homework is messy & fun.</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Being a snake in a pit at OT</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">After church fun at Target<br />
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So we all know Miss Grace will eat very little table food. We have actually stopped feeding therapy until we go inpatient in January. I (selfishly) wanted a holiday season with very little stress. Feeding is extremely stressful for Grace and for me. So we are on a break for a few weeks and she is enjoying as many tapioca bread and sunbutter sandwiches as she wants. Forget trying to get a vegetable in her. This morning at therapy one of the other feeding Mom's shared this video with me. I died laughing. Grace doesn't just refuse vegetables, she refuses almost everything, but the frustration of the parents and the lengths you go through to get your child to eat are so very relatable. <br />
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Do you want to build a snow..errr.... eat Broccoli?<br />
Does this look like your house at meal time? <br />
As a family that has watched Frozen 100 times and listened to the soundtrack another 12,596 times, we now equate our nightly plight to get our 4 year old to eat to Anna, knocking on that door, ever so sweetly trying to coax her sister to break out of the rut and join her in a better, healthier life. And that's why we had to make this song.. Who knows? She's such a Frozen addict, maybe this'll get her to eat Broccoli.<br />
<a class="yt-uix-redirect-link" dir="ltr" href="http://www.visitthegreenroom.com/" rel="nofollow" target="_blank" title="http://www.visitthegreenroom.com/"></a><br />
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So with that I leave you with this <a href="http://youtu.be/TWoumR-jUcQ" target="_blank">giggle</a> . . . Mama2Gracehttp://www.blogger.com/profile/12635949156093162181noreply@blogger.com0tag:blogger.com,1999:blog-1997083198217358711.post-36608329873142395612014-11-13T09:06:00.001-08:002014-11-13T09:06:13.303-08:00Gator & his CEU's<span style="font-family: Georgia, "Times New Roman", serif;">This Saturday is going to be a sad day at our house. </span><br />
<span style="font-family: Georgia, "Times New Roman", serif;"></span><br />
<span style="font-family: Georgia, "Times New Roman", serif;">We are sending Gator back to his trainer, Mr. Jason, for 2-3 weeks. </span><br />
<span style="font-family: Georgia, "Times New Roman", serif;"></span><br />
<span style="font-family: Georgia, "Times New Roman", serif;">Like humans who need continuing education instruction to perform at top level for their jobs, the same can be said for service dogs. We have known for a few weeks this was going to happen, but it isn't making it any easier on Miss Grace. Gator will get some remedial training in some areas and some new training that will help him to go to kindergarten next fall. We had originally planned for this training to happen in the spring, but since we are facing a lengthy stay at the hospital for feeding therapy in the spring, we needed to go ahead and get it done. </span><br />
<span style="font-family: Georgia, "Times New Roman", serif;"></span><br />
<span style="font-family: Georgia, "Times New Roman", serif;">Please pray for Miss Grace and for Gator. They are going to be lost without one another.</span> <br />
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<tr><td class="tr-caption" style="text-align: center;">Watching his girl at therapy this morning. </td></tr>
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<br />Mama2Gracehttp://www.blogger.com/profile/12635949156093162181noreply@blogger.com0tag:blogger.com,1999:blog-1997083198217358711.post-76694331407514869832014-10-23T10:33:00.000-07:002014-10-23T11:01:46.312-07:00 "Pray for me. This is one of our better days."<div class="separator" style="clear: both; text-align: center;">
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Miss. Grace had a rough afternoon yesterday. It was an overly sensory day - her shirt itched, she had to wear two different socks, the rubber band in her ponytail was making her hairs hurt and on and on. It was not pleasant. She had a major meltdown before it was time for our special needs support group at church and she shoved our 50lb wooden bench over on the top of my foot in a kicking screaming foot and in the process taking off all the skin on the top of my foot. Oh joy, right? I was having to breathe deep and remind myself that this parenting thing is no joke. Even Cowpoke was quiet and keeping away from her and usually he is trying to help me calm her down. It was one of those evenings where I count the seconds until bedtime. Yet when I was rocking her before bed, after doing her therapeutic massage, she looks up at me and says, "I love you, Mommy." And my heart melts.</div>
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So 4:45 am came very early. Everyone who knows me in real life knows I am not fully functional until about noon so I was not running on all cylinders. Thankfully traffic was not bad that early and we checked in on time. Miss. Grace started hollering as soon as we pulled into the parking lot that she was not going to surgery. I just smiled and grit my teeth. We come to this hospital during the day to see our local GI but I guess she has not caught on to that yet. She only knows that early morning = procedures and anesthesia. We got inside and she went straight for the fire truck cozy coupe. It has these loud sirens and flashing lights on top. Of course at 4:45 am she was laying on the lights and sirens. Thank goodness for Gator because at this point my head was pounding.</div>
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And then all the sirens made the baby in the room next to us keep crying. I just wanted them to take the darn thing away but they didn't want to set her off. So in came child life with bubbles. . . .</div>
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Then came time to head to the procedure. We do not use vercid ("silly juice") as she has a hard time after anesthesia and vercid makes it 10x worse. She wanted me to take her picture with her unicorn to send to Daddy. I was about to take her picture when the OR nurse opened the door. Her face fell and the drama began. Today it only took 3 of us to hold her down and only about 2 minutes for her to fall asleep from the gas. Now my torso has the bruises to prove the battle. The pregnant anesthesiologist<strong> </strong>said she gets vercid next time and I said, oh no. That just makes it so much worse. </div>
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Gator and I went out to the waiting room where we observed lots of other people waiting for loved ones and friends. Oh the conversations you can overhear while in the hospital waiting room. Let's just say there are currently no ebola patients in Texas, there never were any ebola patients at this hospital and you cannot get ebola from having a routine colonoscopy. Now moving on . . . </div>
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Gator and I had just gone back to join her in recovery and they took off her oxygen and took out her IV. I was about to take her picture and her eyes popped open. Her pupils got really big and the screaming began. She was angry and she wanted out of there. She was hot and she wanted to lay on the tile floor. She wanted a Popsicle, but not that color and not from that nurse. She did not want the pulse ox taped to her finger or her toe. She thinks the oxygen mask smells funny. The bandaids and tape are hurting her. She wanted a cold wash cloth, but not the kind they had. The electric leads are "breaking [her] heart." She wants to hug Gator but he has bad breath and "his tongue is stinging my body." And on, and on, and on. It was over 90 minutes of kicking, screaming, hitting, hair pulling and head butting. Finally I told the nurse we have to get out of the recovery bay. You know there have been several days recently where I have felt like we have made major progress in her sensory processing disorder. Then we go through 24 hours like we have just had and I realize we are no where close to outgrowing this. </div>
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On a positive note her pictures of her esophagus looked good. The top of her esophagus looked better than it has since March. There was one questionable area. They took lots of biopsies. There was no yeast growth which is awesome! Because she takes so many steroids that is always a big risk. Because EoE is a biopsy based disease we have to wait to see what the biopsy results say. Those will be back in 5-7 days. We are praying for low numbers (less than 15) so we can keep turkey and corn and so we do not have to increase her steroid doses. </div>
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Thanks for praying my friends. I had so many text messages this morning and it was just a relief to know so many of you were praying for me and for Miss. Grace. This is a journey and sometimes it is exhausting. I am thankful that on the challenging days when I want to go back to bed and hide my head under the pillow that I have your encouragement, your prayers and your love. </div>
<br />Mama2Gracehttp://www.blogger.com/profile/12635949156093162181noreply@blogger.com0tag:blogger.com,1999:blog-1997083198217358711.post-65131087299775067282014-10-23T09:44:00.003-07:002014-10-23T11:48:41.343-07:00Teal Pumpkin Project<div class="separator" style="clear: both; text-align: center;">
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This Halloween, FARE (Food Allergy Research & Education) is encouraging communities to start a new tradition that will help make this holiday season less scary for children with food allergies: the Teal Pumpkin Project. This campaign encourages people to raise awareness of food allergies by providing non-food treats for trick-or-treaters and painting a pumpkin teal - the color of food allergy awareness - to place in front of their house along with a free printable sign from FARE to indicate they have non-food treats available. <br />
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The Teal Pumpkin Project is designed to promote safety, inclusion and respect of individuals managing food allergies – and to keep Halloween a fun, positive experience for all. <br />
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Our 4 year old daughter has severe food allergies. You have probably seen us out and about with her service dog, Gator. He smells for dairy & soy proteins among other jobs. In the past fun childhood experiences like trick-or-treat have been forbidden as she cannot have dairy, soy, wheat, eggs, peanuts, tree nuts, fish, shellfish, coconut or beef. And although it seems crazy, those 10 things are in almost everything - including play dough! This year we are excited to participate in the TEAL pumpkin project. You may have seen it on Facebook or on the news. Our house will have a TEAL painted pumpkin out front and we will be handing out glider planes, fake rhinestone rings, rubber duckies and some super annoying ghost whistles. We will give these treats to all trick-or-treaters, but if you know of an area child who also suffers from food allergies please let them know we are a TEAL pumpkin house and will be handing out toys for treats. We look forward to being able to participate in a safe way this year. <br />
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<a href="http://www.foodallergy.org/teal-pumpkin-project">http://www.foodallergy.org/teal-pumpkin-project</a><br />
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If you are a local family and don't have our address then message me and I can give it to you. 827 says we can't post it on the blog. Mama2Gracehttp://www.blogger.com/profile/12635949156093162181noreply@blogger.com0tag:blogger.com,1999:blog-1997083198217358711.post-59695209905249431022014-10-12T19:47:00.000-07:002014-10-12T19:49:20.768-07:00Picture update - Is there such a thing as a photo blogger?<div class="separator" style="clear: both; text-align: center;">
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September ended on a busy note! We had a follow up with our food allergist. There were no real changes in her care plan. She gets anxious when we go there as she expects blood work or skin testing. This time she got neither and she got to leave with two FROZEN stickers. It is the little things that make my baby girl happy. Even without having lab work she was eager to get out of there.<br />
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On September 27th Miss Grace enjoyed a day at the Kimbell Art Museum in Fort Worth and a trip to <a href="http://steelcitypops.com/locations/ft-worth/">Steel City Pops</a>. Safe treats are hard to come by but at our food allergy appointment the nutritionist told us that they had safe options. We were excited to check them out and Miss Grace loved her strawberry popcicle so much that she ate TWO! Please note not all of their pops are top 8 free so please ask.</div>
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<img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQH-M0XfDHxa-FKm-qmlOOeGkXH7zRpT2wfc6mivOYKP5tObTyWj4wrU2Iv4p8R7CGd5HzJjnwFgyuTBUGzzDH4fAMD7iwYJwHVWTAf-brX0d7QMcQJv8Ry4t8x0xRoMyCs1-Cvi8vZOI/s1600/Kimbell+Art+Museum.JPG" height="320" width="240" /></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhxQVw-xr8SWrVENbdC1HtK_pS4_otCpaPkRFwHhOGqQhcUgPfi6rxUKXEU8gfxgOEFymBYXi_Htl8bM8R8WvLLtfrgOCdWdvhFZyIid7vOPVTlw356aDa_dQey2YWH27aDpoL59IB6rmU/s1600/Planting+pansies.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhxQVw-xr8SWrVENbdC1HtK_pS4_otCpaPkRFwHhOGqQhcUgPfi6rxUKXEU8gfxgOEFymBYXi_Htl8bM8R8WvLLtfrgOCdWdvhFZyIid7vOPVTlw356aDa_dQey2YWH27aDpoL59IB6rmU/s1600/Planting+pansies.JPG" height="320" width="320" /></a></div>
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Each September our church sets aside a Sunday to give back to the community in one massive effort. Now we are blessed to serve and be apart of a church that gives back to our community and around the world all year long, but this dedicated Sunday we all serve together all across our county in a massive effort. Our family served at Cowpoke's school. They guys helped assemble and stain picnic tables and lay rebar for a concrete pad. Miss Grace and I planted and watered lots of pansies and then we worked in the library taking apart workbooks and sorting the pages for the kindergarten teachers. I love teaching our kids that it is better to give than to receive. This year Grace truly understood what we were doing and why. Of course after we worked we had to play. </div>
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<img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgoPiXh7fA6ADKDHbauT_giL9rk25JuWpyIb1zeoJmDHx-2zqqIPsUmiJRzovzqKZ-L39HRQY69SezqBbvmtJWUfrV6rrKHFnOlm_EvEtSJankpIHeZmzs09Go9FJkHbwzf4qgzs0IBoVQ/s1600/Be+the+church+2014.JPG" height="320" width="320" /></div>
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She got to check out her very first book from the school library! Boy was she proud! And Grammy bought her a book of Fancy Nancy fall stories. She has really enjoyed that! Fancy Nancy is fabulous!</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjTD7nDSBpFlQ-BsDjQbFN-pf7BkL7R0kvQ0MJXAD-FcRhrHdp7EHFvljrkP3XOu-ZVWcp-Z3lv8Rr0iGfQvZkdW1B07NgnTJ2nMQFVRoRNx-AHYxBb1hNlS3tmACbzroJNGA3L0VWJz7w/s1600/Fancy+Nancy.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjTD7nDSBpFlQ-BsDjQbFN-pf7BkL7R0kvQ0MJXAD-FcRhrHdp7EHFvljrkP3XOu-ZVWcp-Z3lv8Rr0iGfQvZkdW1B07NgnTJ2nMQFVRoRNx-AHYxBb1hNlS3tmACbzroJNGA3L0VWJz7w/s1600/Fancy+Nancy.JPG" height="240" width="320" /></a></div>
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On Saturday, October 4th we spent the day at the State Fair of Texas! This is an annual tradition we have had since before we married. We get there at 9am when the gates open and eat breakfast at Owen's, as was 827's family tradition with his Daddy. Then we spend all day at the fair and the exhibits. We don't leave until after the light show on the esplanade. It is amazing and memory making.</div>
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I love the Little Hands On The Farm exhibit. Grace took her very first steps there in 2010. That was before her adoption was consummated so we couldn't post pictures yet. I think those picture CD's may be in the attic. Here are the last two years. Man she is growing up fast. </div>
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2012</div>
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Oct 2013</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjCjZekKt6TBFbMF_joagdZGlhizwfCvWGF2r-zmQiDcpeTvEe0-0omXUAdKmuItW_4CDZkEb5BlGh4UJOxKDD0gRyN3Vj9DPuGYrSaANDv5fV_oIT_hFWqJPHN9acvJV0C7RxJ3Pehc6s/s1600/State+Fair+of+Texas+2014+B.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjCjZekKt6TBFbMF_joagdZGlhizwfCvWGF2r-zmQiDcpeTvEe0-0omXUAdKmuItW_4CDZkEb5BlGh4UJOxKDD0gRyN3Vj9DPuGYrSaANDv5fV_oIT_hFWqJPHN9acvJV0C7RxJ3Pehc6s/s1600/State+Fair+of+Texas+2014+B.JPG" height="240" width="320" /></a></div>
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Oct 2014</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiaLwHgYZchDtSety6rH-ReEB0Z5neMJbqEU4Jko_-IlDKp1wmcFewHWyB1fJ2SPNg6OTO0YMXBgUIDJ0PLm6rfT4Rh1cQ6gezrWKS5SB-E567ehUTLkB1AHJPqLn9tUxliOI-5fobeZhs/s1600/State+Fair+of+Texas+2014+C.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiaLwHgYZchDtSety6rH-ReEB0Z5neMJbqEU4Jko_-IlDKp1wmcFewHWyB1fJ2SPNg6OTO0YMXBgUIDJ0PLm6rfT4Rh1cQ6gezrWKS5SB-E567ehUTLkB1AHJPqLn9tUxliOI-5fobeZhs/s1600/State+Fair+of+Texas+2014+C.JPG" height="320" width="240" /></a></div>
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We love to ride on the Texas Star Ferris Wheel! It is amazing with all her sensory issues that she can tolerate this. Every year she wants to go and then changes her mind. This year she joined me and Cowpoke!</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiLbpDAmME0-8n3CgNhiQWe_vKP7-OC1xE4y6D_OAiWWEyu2nAai_Nec-p8-Yc0CwvMIFIMiYXeWh3ygeLG9h1mLr9SpxsIQfUrfrbBnKAR-wCKzT6QedeeSHyDzeo2Ig8JVG0gc32_XWM/s1600/State+Fair+of+Texas+2014+E.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiLbpDAmME0-8n3CgNhiQWe_vKP7-OC1xE4y6D_OAiWWEyu2nAai_Nec-p8-Yc0CwvMIFIMiYXeWh3ygeLG9h1mLr9SpxsIQfUrfrbBnKAR-wCKzT6QedeeSHyDzeo2Ig8JVG0gc32_XWM/s1600/State+Fair+of+Texas+2014+E.JPG" height="320" width="240" /></a></div>
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And the required State Fair Picture with Big Tex. At this point she was getting really tired and her legs were getting heavy from her braces. </div>
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We have been enjoying the beautiful fall weather. 827 took this picture of her as she was picking flowers while he was grilling out. </div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjIYm9ukf2m9AwFeOojDz8pfjST5-nMvQlqpvpjCVhGk0jEsvIdkm9KVlIr4OW48XDTujkG9QSQul48ZaaXd5o4wB8l9-m7GkKNPMyZjItI9TEpaC6Mktro2n4WP40tMxmxuf1h-O0kxt8/s1600/popcicle+blessings.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjIYm9ukf2m9AwFeOojDz8pfjST5-nMvQlqpvpjCVhGk0jEsvIdkm9KVlIr4OW48XDTujkG9QSQul48ZaaXd5o4wB8l9-m7GkKNPMyZjItI9TEpaC6Mktro2n4WP40tMxmxuf1h-O0kxt8/s1600/popcicle+blessings.JPG" height="320" width="320" /></a></div>
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We have a precious friend in town who is a huge supporter of foster/adoption and who has followed Miss Grace from her birth. She knows about all her food issues and she knows about her love of popcicles. She blessed our socks off with a huge supply of safe popcicles for our girl and Cowpoke!</div>
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We also had a fall rodeo and carnival at our therapy center. Right as it started there was a huge deluge of rain. Crazy rain, blinding rain, soaking rain, knock over the petting zoo and let the animals escape rain. It ended up being a fun evening inspite of the rain, but Miss Grace was overwhelmed by all the people inside and she wasn't thrilled that the face painter couldn't paint a "real Elsa." <br />
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<img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgVEnjjOX_qNce80I76-UbxmMn69c6SsRTF3XqdxXL0971zy6BbHIzEhJYju-rul_ihVd91V1U4uA3cM0LFZOxy_YRMLlFGxxE_CLL83K1p5DaLsVmDeGXC-gyZGTYXqCbavoP3a1rX6TM/s1600/OCH+Rodeo+Carnival.JPG" height="320" width="240" /></div>
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I have been struggling as we found out that she has to go back into her full AFO braces (up to her knees). Her ankles are weak and she is rolling them a lot. She doesn't get the ankle support she needs in her shorter braces. The hope and prayer is that after a few rounds of botox injections that she will be able to go back to SMO's. Pray that with me please. She has an awesome new orthodist and we didn't have a single meltdown during the casting. At our old orthodist it took me and 827 and usually a PT tech to hold her down. As you can see she sat there on her own. I just struggle because kindergarten is coming and kids are mean. She has so many challenges and things that make her different and stand out that I really did not want these too . . . .</div>
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Leaving you with some super smiles!</div>
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And Gator Dog snuggles!</div>
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PS. Pray for Gator Dog too . . . he is going to go do some additional training in November to make the school feel more comfortable with him going to kindergarten without me or 827. We have already begun talking with Grace and she is insistent that he isn't going anywhere. It will be a hard separation for both of them but we really need and want the school district approval and are willing to ride out this time it that is what it means. </div>
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<br />Mama2Gracehttp://www.blogger.com/profile/12635949156093162181noreply@blogger.com0tag:blogger.com,1999:blog-1997083198217358711.post-83396146932430403842014-10-01T12:08:00.001-07:002014-10-01T12:08:01.965-07:00World Cerebral Palsy DayToday is world cerebral palsy awareness day. Grace currently carries the diagnosis of spastic diplegia cerebral palsy. We are doing some genetic testing and that may change to a congenital paraplegia diagnosis, but for now we are supporting awareness and advocacy and research for cerebral palsy. It is kind of ironic for us as yesterday we found out that because Miss. Grace's left leg is drawing back up we have to put her back in her SMO's (the shorter leg braces) and actually order new ones as she has grown. We are praying that this is just until she starts her Botox injections in January, but honestly we don't know. Pray for my little fashionista as she is not thrilled with this change of plans. If you wore green for Grace tomorrow please post a picture on our Grace & Gator facebook page. It's school picture day for Grace so we wore green in the morning and then changed for pictures.<br />
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Mama2Gracehttp://www.blogger.com/profile/12635949156093162181noreply@blogger.com0tag:blogger.com,1999:blog-1997083198217358711.post-32317268793188953112014-09-09T21:01:00.003-07:002014-09-09T21:01:36.948-07:00Take me out to the ballgame! <div class="separator" style="clear: both; text-align: center;">
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Variety, the Children's Charity of Texas, had a special evening at Globe Life Park for some super special kiddos! <a href="http://www.varietytexas.org/">Variety</a> is an organization near and dear to our hearts as they helped us to fund Gator. Anytime they ask us to show us with Miss Grace and Gator for PR purposes I am all about that. We are forever indebted to Variety and their generous donors. I don't think people truly understand how much life has changed for the better with Gator, but I will write more on that later.<br />
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We spent the first hour in the Kids Zone! It was Grace's first time to a professional baseball game and she enjoyed getting to play and climb in there. <br />
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Every staff member we encountered at the ballpark was incredible as they truly wanted to make sure all of us had the best experience ever! Every time I turned around someone was bringing Gator ice and cold water for his bowl. They sent a team member around with Miss Grace to allow her to experience all the Kids Zone activities and let me just be a Mom and interact with all the kids. Grace wanted to go down the big bat slide like she saw all the other kids doing. After several times of changing her mind she went down - just the once - but she did it and I was so proud of her!<br />
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After the Kids Zone we had to take some pictures and then we headed to our seats. We were seated behind three older gentlemen who were season ticket holders. They were super sweet in talking to Grace and listening to her endless commentary - "Where is the football team?" "When is the Indian Band coming?" "Where is the helmet?" (the inflatable helmet the high school football players run through) "Why is that man not hitting the ball?" "Why, why, why . . ." <br />
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I was THANKFUL that our older daughter was able to come help tonight when 827 was not able to get off of work. She was a huge help. She was amazed at how protective Gator was. Gator is not trained to smell peanuts, just dairy and soy, although peanuts are on the banned food list. The older gentleman in front of us was eating peanuts and it was like Gator knew that they could hurt Grace and he was standing between her and the gentleman until he put the bag away. It is amazing all he just knows to do. I am amazed my him every day and blessed to have him as my "6th child."<br />
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So now what I am getting messages about . . . why is she in the wheelchair? Back in April our muscular neurologist that treats Grace's spastic diplegia cerebral palsy told us that when she has growth spurt we are going to see some increased issues with her muscles. As she gets bigger the problems are going to increase. As a Mom that is hard for me because I see other kids with the same diagnosis that are far lower functioning than my baby girl and I think how can they have the same diagnosis? In the spring our neurologist suggested that we order a special "assistant propelled wheelchair" aka "big kid stroller" for Grace. Distances are hard for her and her muscles are much more fatigued in the evening. She is only 33lbs but she is 40.5 inches tall and she is growing fast. Her size makes her difficult for me to carry her long distances and she is to tall for our beloved BOB stroller. Her head touches the top of the canopy and that causes a whole gamut of sensory issues. So after much discussion we ordered her chair. She won't need it everyday and she can walk. We want her to walk as much as possible.<br />
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Socially she has become more fashion forward and she knows that her friends at school and church are not wearing the leg braces. We had a huge power struggle at the end of the school year and after talking to the physical therapists we decided to let her come out of those braces and work her muscles hard this summer. We have done that but she is growing and her muscles are changing. Her hips and knees are doing a lot better (Thank you swimming and water therapy!) but her knees down are just struggling. While we await her genetic testing we are going to start quarterly botox injections in her legs and feet to help these muscles. She doesn't want to wear "magic shoes" anymore and she participated in the discussion with the neurologist yesterday and understood it was magic shoes or shots. Neither of these solutions are short term. She chose injections and so we wait for insurance approval. But while we wait for that he wants us being really careful with distance and her foot that drags. We don't need her falling and breaking her arm or wrist. So the deal was we get our chair and we wait for approval to start injections. Except that our chair is still on order. We have been expecting it for the last month but it still isn't here. The dealer brought this sample for us to use tonight as we knew it would be a lot until ours is here. Grace is going to be sorely disappointed as hers does not have all the upgrades - light up wheels and sound machine that this one did. It was a huge help tonight and she could roll and wheel that thing everywhere. In fact when it came time to leave she did not want to go and kept trying to wheel her chair away from us and then when I took over control from the back she was throwing on the brakes. Little stinker! So now we wait for our pink one to come in any time now. <br />
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Mama2Gracehttp://www.blogger.com/profile/12635949156093162181noreply@blogger.com0tag:blogger.com,1999:blog-1997083198217358711.post-61124286015084899132014-09-08T14:34:00.004-07:002014-09-08T14:34:49.051-07:00The Reader's Digest Version UpdateI know I say every time I am going to do better about this whole blogging thing and I really do intend to, but you know, life happens? I am sorry. I really will try to do better. I have a lot to cover so we will just hit it in bullet points with lots of pictures of Grace & Gator. <br />
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<li>We got discharged from pulmonology rotation! We love our pulmonologist but we all agree that Miss Grace has flares of asthma and sleeping issues because of EoE flares and seasonal allergies. We can treat that at home with guidance from our pediatrician and developmental pediatrician. Unfortunately the ragweed in Texas is making Miss Grace's asthma a little haywire but we are dealing with that at home! </li>
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<li>We had another pediatric GI appointment with our fabulous EoE specialist. While I thought all the awful side effects she was experiencing were from the swallowed steroid it turns out it was the Splenda that the steroid is mixed in and swallowed! Miss Grace can add artificial sweeteners to her list of banned foods. We got her on to mixing with blue agave nectar and our life has been so much better lately! Thank you, Jesus!</li>
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We survived her 6 month check up at the dentist. We had been told that if they were unable to get x-rays and clean she would have to be scheduled to do it under anesthesia. She wouldn't do x-rays or a full cleaning, but they were able to do fluoride really quick and they said we could wait 6 more months. As you can see Gator Dog was not so sure what they were doing to his girl. I love how protective he is of her. </div>
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Our geneticist is running more tests. We were hoping to get discharged but that didn't happen. She is working with our neurologist to investigate some other things. The good thing is that insurance quickly preapproved the really expensive tests that now we wait 6-8 months for results on. She has not met a dog she doesn't like - real or fake!</div>
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My precious friend and bridesmaid in my wedding found Miss Grace the much longed for Queen Elsa dress. She went though about a week where she would answer to nothing but Queen Elsa. Everyone who knows her in person knows that she LOVES to dress up and she has been over the moon excited with her gorgeous dress. She will gladly serenade you with "Let It Go" upon request. </div>
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SCHOOL! We started school. She goes to school from a full morning of therapy so she is tired. We go straight to lunch. Things at her school have changed as it is no longer an early childhood only campus. There have been some adjustments and some sensory issues to work on. She is doing better and got treasure box two Friday's in a row! It is all about the baby steps. She goes to pre-k for an hour and spends 2 hours in the 4 year old preschool class. </div>
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She continues to love therapy! We spend 4 mornings a week in therapy and I am thankful for our therapy team. We are going to be so sad when the outdoor pool closes the end of this month and water therapy comes to an end. We are going to pursue some other options for use of an indoor pool so pray I can work those connections. The neurologist at her appointment today said he could tell how much being in the pool had helped her legs the last 4 months. We have some decisions to make on treatment of her legs going forward. I will share more on that in the future. Just pray for 827 and I to make the best decision for her care - either decision will be a lifetime treatment and both carry a hefty price tag. </div>
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Here is a cute picture to leave you with. Tomorrow she has an exciting evening ahead of her so please stay turned. I won't wait another month to blog it!</div>
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Mama2Gracehttp://www.blogger.com/profile/12635949156093162181noreply@blogger.com0tag:blogger.com,1999:blog-1997083198217358711.post-9444187539517649582014-08-16T20:26:00.004-07:002014-08-16T20:26:54.528-07:00Medication side effects and a slacker MamaI apologize for not keeping on top of this blog. I try, but sometimes it is just more emotional effort than I have for the day. I pledge to do better. Forgive me?<br />
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So I have three weeks to cover and where do I even begin? August has been HOT in Texas. We continue with our intensive therapy. When Grace's biopsies came back with elevated eosinophil levels we had to increase her steroids. It has been rough. Steroids are not fun short term much less indefinitely. Grace has had a hard time calming down and resting. Her "motor" is constantly running at 100+ miles an hour. There have been many moments each day where I have been concerned about her safety as she is downright wild. It's hard to discipline and correct when it is a side effect verses a behavior. Parenthood is hard! We have been trying to do a lot of gross motor activities/heavy work multiple times a day. Grace loves the water and we were trying to swim 3+ hours a day until all of these allergens have stirred up her asthma. She also loves to ride her amtryke even when the temperature is 100+ degrees outside. <br />
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Our local foster and adoptive families gathered together to celebrate the end of summer with a Back to School swim party. It is always fun to get together with families that share our heart for adoption. We had almost 80 people in attendance! We had a cookout dinner and one of the sweet ladies in charge was concerned about what Grace would eat. I told her that I would provide her food and not to worry about it. She wanted her to have a special treat though and got her favorite popsicles! Here is Grace with her sweet friend Isaiah enjoying a cold treat!</div>
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We went back to the geneticist on Monday. We were hoping to get discharged but the geneticist wants to run more tests. She wants to run another test. This test is really expensive and we have to get insurance approval first. Once it is run it takes 6 months to get the results. I am personally feeling that all of her issues are because of her EoE but I am trying to trust those with more education than me. Because Grace is adopted and we don't know anything about her paternal side she wants to make sure we have done everything we can to get answers. One thing I have learned is that doctors don't like it when I tell them "I read on the internet . . . ."</div>
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We are still working on getting her calories in. She has never been a "drinker" since we took her off of elecare (her special formula) and pushed her to eat table foods. I have struggled with it being so hot and trying to keep her hydrated. She loves to have a tea party and my Great Grandma's tea cups seem to be the key to getting liquids in her. She drinks almost all of her fluids out of a tea cup now. It's the little things, you know? Fine china, placemats and cloth napkins. These are the things "tea time" is made of. </div>
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Friday it was back to see our GI. We have been concerned about the side effects of her medicines. Our doctor feels like she is reacting to the splenda that we mix her budesonide in to make the paste that coats her esophagus to bring down inflammation and irritation. Grace has never had any other artificial sweetener so this is a good possibility. You cannot use real sugar as it would spike your blood sugars with the amount needed for the paste consistency. </div>
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Here she is talking with Gator about things that are appropriate to share with strangers. When we got to the clinic she had to potty. When we came out she walked in to the infusion lab where there where 3 men having infusions and announced to them that she "pooped big logs in the potty!" One man kind of giggled and the other two nodded their heads. We had to talk about not sharing our potty business with people outside of our family. </div>
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Anyway so our doctor wanted us to change her slurry to mix with Neocate Nutra. Nutra is a medical food (kind of formula powder texture but designed to be mixed with medicine). </div>
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We got a sample and used it last night and Grace gagged and gagged and cried and cried. She says it tastes like slime and it hurts her tummy. I am not so sure it hurts her tummy (that was probably from the retching) but it does look gross and of course now it isn't sweet. She can't have any food or drink until morning after she takes her slurry so we must keep it down. Tonight she worked herself up into a tizzy over not wanting to take it. She gagged and retched but thank God it stayed down. Pray she can take this and pray that her side effects from before cease. As my fellow EoE Mom pointed out our doctor is trying to give Grace quality of life by giving her every effort to options out there instead of going elemental yet. Elemental means where she will get nothing (even water) but formula to eat or drink. So our number 1 prayer request right now is that she will be able to swallow the slurry with the nutra and that she will be able to control/adjust to the side effects if they still persist. </div>
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This week we will find out who Grace's teacher is and I promise a post on that. Grace's big sister is getting married on Saturday so we have a full week ahead for the last week of summer 2014. </div>
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Mama2Gracehttp://www.blogger.com/profile/12635949156093162181noreply@blogger.com0tag:blogger.com,1999:blog-1997083198217358711.post-24797949091149966262014-07-23T19:14:00.004-07:002014-07-23T19:14:35.998-07:00Discouraging news - the biopsies are inSo yesterday we jumped right back into our routine of therapy and appointments after her procedure on Monday. We started the morning with OT at 8am. She is working on some sensory issues in OT and her therapist, Ms. Heather, had a brand new dress up dress and crown for her to wear while she worked! (When it came to taking it off we were anything but smiles!)<br />
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After OT and feeding therapy we picked up 827 and Cowpoke and headed off to the eye doctor about 45 minutes away. Our pediatric ophthalmologist is fabulous and he sees Miss Grace every 3 months.<br />
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She was wonderful in the waiting room waiting to see him and then was all smiles when she found out she didn't have to get her eyes dilated and just had to play the seeing games!<br />
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We did find out her vision continues to get worse. She was down to 20/80 with correction. He will see us again in 3 months and we will see what her vision is then and order new glasses at that point. Her eyes are really bad and he said LASIK can stop the vision loss but they don't do it until they stop growing and with girls is aged 16-18. That is a long way off. </div>
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We took 827 to work afterwards. There is a botanical gardens area right across from the police department. Grace always wants to go see the koi fish. Sadly it was to hot and they were all hiding deep in the pond and under the shade of the bridge. She settled for a picture with the flowers today. </div>
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When we got home she got a surprise visit from her favorite big sister! She loves her so! <br />
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Today was back to OT, PT and feeding and then a fun afternoon coloring sidewalk chalk with Daddy. We had just gotten to the pool for some PT homework when her doctor called.<br />
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So now about the biopsies and what you have really been waiting for . . . Her eosinophil numbers are back up. She has to go back on the high levels of steroids. What that tells us is that there is still something or somethings in her diet that her body can not tolerate. The sad thing is that there is so little she can eat we are getting pushed to the lots of formula point that we have worked so hard in the past 18 months to move away from. It is hard to understand why something your body needs to survive (food) that it cannot handle. The doctor wants her on the high steroids again (and she cried when she had to take them tonight) and he will see her when he is here in 3 weeks. He said we need to postpone inpatient for 6-12 weeks and let her body rest and let the inflammation go down. Sadly this probably means she is loosing her beloved sunbutter (a peanut/nut free alternative to peanut butter of ground sunflower seeds), tapioca bread and bananas. It just makes me so sad for her. I pray that very soon a cure will be found for eosinophilic esophagitis and that she will be able to eat. I pray her joint pain from the high eosinophil levels will be gone and she can run and jump and play like other kids without the pain and discomfort. I pray her crooked legs and feet would straighten and the tremor in her hands from the cerebral palsy will be gone. I pray God would restore her vision or at least stop its loss. I know He is able. I know He loves my baby girl more than me and she is on loan to us from Him. I pray her story would impact nations and Christ would be glorified in her life. As always thank you for praying for my precious little girl. Mama2Gracehttp://www.blogger.com/profile/12635949156093162181noreply@blogger.com0