The Reader's Digest Version Update

I know I say every time I am going to do better about this whole blogging thing and I really do intend to, but you know, life happens? I am sorry. I really will try to do better. I have a lot to cover so we will just hit it in bullet points with lots of pictures of Grace & Gator.

• We got discharged from pulmonology rotation! We love our pulmonologist but we all agree that Miss Grace has flares of asthma and sleeping issues because of EoE flares and seasonal allergies. We can treat that at home with guidance from our pediatrician and developmental pediatrician.  Unfortunately the ragweed in Texas is making Miss Grace's asthma a little haywire but we are dealing with that at home!

• We had another pediatric GI appointment with our fabulous EoE specialist.  While I thought all the awful side effects she was experiencing were from the swallowed steroid it turns out it was the Splenda that the steroid is mixed in and swallowed! Miss Grace can add artificial sweeteners to her list of banned foods. We got her on to mixing with blue agave nectar and our life has been so much better lately! Thank you, Jesus!

 

• We survived her 6 month check up at the dentist. We had been told that if they were unable to get x-rays and clean she would have to be scheduled to do it under anesthesia.  She wouldn't do x-rays or a full cleaning, but they were able to do fluoride really quick and they said we could wait 6 more months.  As you can see Gator Dog was not so sure what they were doing to his girl.  I love how protective he is of her.

 

• Our geneticist is running more tests. We were hoping to get discharged but that didn't happen. She is working with our neurologist to investigate some other things.  The good thing is that insurance quickly preapproved the really expensive tests that now we wait 6-8 months for results on. She has not met a dog she doesn't like - real or fake!

 

• My precious friend and bridesmaid in my wedding found Miss Grace the much longed for Queen Elsa dress. She went though about a week where she would answer to nothing but Queen Elsa. Everyone who knows her in person knows that she LOVES to dress up and she has been over the moon excited with her gorgeous dress.  She will gladly serenade you with "Let It Go" upon request.

 

• SCHOOL! We started school. She goes to school from a full morning of therapy so she is tired.  We go straight to lunch.  Things at her school have changed as it is no longer an early childhood only campus.  There have been some adjustments and some sensory issues to work on.  She is doing better and got treasure box two Friday's in a row! It is all about the baby steps. She goes to pre-k for an hour and spends 2 hours in the 4 year old preschool class.

 

 

• She continues to love therapy! We spend 4 mornings a week in therapy and I am thankful for our therapy team. We are going to be so sad when the outdoor pool closes the end of this month and water therapy comes to an end.  We are going to pursue some other options for use of an indoor pool so pray I can work those connections.  The neurologist at her appointment today said he could tell how much being in the pool had helped her legs the last 4 months. We have some decisions to make on treatment of her legs going forward. I will share more on that in the future. Just pray for 827 and I to make the best decision for her care - either decision will be a lifetime treatment and both carry a hefty price tag. 

 

 

 

• Here is a cute picture to leave you with.  Tomorrow she has an exciting evening ahead of her so please stay turned. I won't wait another month to blog it!