Grace & Gator: Our Next Step in Grace's Journey with EoE

Well it is a gorgeous day here in Texas! The weather is good for my soul! We have the house clean and all the windows wide open. I love this time of the year! If the weather is good life just seems better, you know what I mean? "Abundant sunshine" is a GOOD thing!

This week has been productive, but low key. We ordered Grace's new big kid stroller at therapy yesterday. She has outgrown my beloved purple BOB stroller - not by weight but by height! Her new stroller should be here in about 60 days and is bright pink! She picked the colors and she is so excited.

On a food front she has actually done decently at meals this week. The problem is all her new meds make her even "busier" which makes her expend more calories. With her list of "safe foods" growing smaller and smaller we are having a hard time with calories. The foods she can eat are all low calorie. You can't gain weight eating steamed broccoli and applesauce! Tommy & I talked with our feeding therapist and nutritionist at length yesterday. They both talked with our GI and Food Allergist. Our GI called today to say she wants to do another scope and more biopsies on June 18. We hope that with all the medications and elimination diet that her eosinophil's have dropped greatly, but whether they have or not we must focus on adequate nutrition. We have two options: go back inpatient for 4-6 weeks and do intensive feeding therapy or put in a feeding tube and give her night feeds. There are pros and cons to both. We know eventually the feeding tube will be our only option but we would prefer to keep her on table food as long as possible. Our goal is 3-4 years. With her sensory issues I can see the feeding tube driving her crazy - she cannot stand Band-Aids or Kinesio tape on her feet and legs. If we go inpatient that means another huge block of time away from Cowpoke and it means being in the hospital with Grace and Gator! So please pray for 827 and me. We have some big decisions to make and thankfully we have some time to really pray hard and research hard. This parenting road is no cakewalk!