We met with our new GI today. He spent a long time talking with us about Grace and he had reviewed all her records from birth forward. He said he wanted to deal with the reflux and figure out why she is refusing feeds right away. He is concerned that she is having a massive yeast infection in her esophagus, stomach and lungs because of the steroids. He won't be able to diagnose for sure until he does the biopsies next week. We have scope and biopsies next Thursday, May 22. Starting tonight we will switch the medication to what he has directed.
She was down another half pound in his office today. That makes 3 pounds in about 24 days. He said given her restrictions and previous biopsies he cannot say she won't end up with a feeding tube but he wants to give time for the scope and biopsies and also time to give the new medicine to work.
827 & I both felt very confident in him and how he had taken the time to learn our child and listen to the information he had gotten from y'all. Thank you for your help and support as we have navigate this journey. It hasn't been easy or fun and your support has meant a lot to our family. I was super thankful to unload my suitcase out of the Mama Bus tonight at home.
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