Today was an okay day. We had some issues that needed resolving and thank goodness for Daddy who is not afraid to say no. Mama tends to be emotional and compliant. I will be honest - the last 36 hours have not been pleasant and I was ready to pack up and come home. But then I remember our goals for Miss Grace and I see how amazing she is doing in feeding with her awesome therapist, Mrs. Kayla and her feeding tech, Miss. Lauren.
On a praise note, Miss Grace ate 23 grams of banana today! She is not a banana fan but the natural potassium does wonders in helping her legs not to cramp. Last fall we spent 5 30 minute outpatient session on banana and were unsuccessful. Today she did it! She does not want a tube and she knows that we mean business about eating. We are so proud of her!
Today she started DISD hospital school. Her teacher is Mrs. Dixon and she was super sweet. School only lasts 30 minutes. Grace got to do the calendar and weather and work flashcards and do some writing. She had fun so I was glad that was a positive spot among a busy day of therapy.
This afternoon we spent some time outside on the playground. It was a beautiful 80 degrees and that hour that we boycotted "quiet rest" and played outside was good for all of us!
We finished her Valentine's for her PPCD and Pre-K friends at home today too.
She also was blessed to receive a package from the Bee Brave Foundation today! It was her own personalized busy tray art desk! We have no idea who recommended her for this special blessing but to whoever you are THANK YOU! It was a huge hit!
Thank you friends, for continuing to pray for us. Your prayers are felt and are coveted. We are all determined to make excellent progress and control this disease and get the calories she needs. We love you all!
Until tomorrow,
Mama
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