Miss. Grace is making steady progress here at Food Camp. She is working hard in her therapies and she is really pushing through a lot of things. We are so proud of her hard work!
On Thursday evening we had the best time since we came to Food Camp. There was a scheduling error and the monthly family dinner was canceled. The parents were hungry (there is not cafeteria here in our building and you get one meal tray a day and cannot eat in front of your child until after 7pm) so we decided to order pizza and hang out in the playroom. The kids had a good time and the parents got to visit, laugh and relax. It was so therapeutic for me - I needed that connection and downtime. This process is incredible intense and rigid. I was thankful for new friends and laughter.
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| This older girl is Kaitlyn that I asked you to pray for. She got to see the pain management doctor and is feeling better with a medicine change, although her health is still fragile. Please keep praying for her. |
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| Sometimes Grace is just so worn out. This process is intense on all levels. Thank goodness for Gator Dog loving. He has changed her world so much. |
Friday started off sad, but turned in to a good day. Our suitemates and dear friends graduated from the program. Gabby & Grace became very close and were both in Princess Wonderland most of the day. They played well together, went to school together and pushed each other in therapy. Her Mama was just as precious and we look forward to growing our friendship outside of the walls of the hospital. I was careful not to tell Grace that Gabby was going "home," but she heard the nurse say that. For the first time in 11 days she asked when she could go home.
Friday afternoon we got a visit from our friend Amber and her precious baby boy! We were laughing as we realized we have known each other almost 8 years now! What started out as a professional relationship has become a deep friendship. I am thankful for what she has meant to our family! We loved seeing them and Grace loved her new FROZEN dress and accessories.
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| Miss Amber has known Noah since he was a tiny baby boy! |
Saturday we were looking forward to a beautiful weather day with time for outside play in between therapy sessions. 827, Cowpoke and Layni all came to visit! We were so excited for family time and going outside! We went to the outdoor playground and after about 15 minutes Grace had a big crash, tripping over her own feet. She hit her head pretty good and landed on her face. It was a bloody mess and she was hysterical. She finally calmed down but did not want anyone touching her. She certainly was not going to do any more therapy for the day and she was not going to eat. She was able to rest, although she was not comfortable (and she was refusing meds offered). She was up and down until about 3 am. Needless to say we are both dragging this morning. Even Gator is tired!
Please keep praying! We need her to feel better so she will eat and do her therapies so our stay here is not extended! Thank you so much! I cannot imagine being here without my prayer warriors praying for us! ~ Mama
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| Cowpoke was drawing her picture and doing everything he could to cheer her up |
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| She finally calmed down and slept while 827 held her. |
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It's 2:30 am and her face hurts and she is swollen up pretty good. Poor kiddo cant catch a break.
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