We have had a lot of questions this week about Grace's new diagnosis of eosinophilic esophagitis. It is different, and sadly much worse, than even dealing with her FPIES to dairy and soy. We are quickly trying to learn everything we c...an as we prepare to meet with our team and see if we proceed with care here in Dallas or go to Cincinnati Children's where they are doing ground breaking work in eosinophilic esophagitis. We spent much of today watching webinars with http://www.apfed.org/drupal/drupal/webinar_series
Joshua was featured on Anderson Cooper's television show in March of 2012. He is fed by a tube that is directly inserted into his stomach. He has NO safe foods that he can eat. Eosinophilic Esophagitis is a rare and serious medical disease with NO CURE. Please help to raise awareness and find a CURE for Joshua and Grace.
http://youtu.be/-aBrhi0ZK4U
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